Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Five For Friday 4/18/14

Written by Katie. Posted in Five For Friday

The 3rd annual is in the books! I will need to devote a whole post to the night…and figure out what words I can use to really express the emotions I continue to feel over the incredible generosity, love, and support we have received from so many who have embraced us and our cause. It is hard to put the grandiosity of these emotions into words, but I will try my best…I will try to get to work on that soon. I will also post Allie and my speeches.

1. Medical Stuff:

  • As expected, I became pretty sick after the event. I crashed hard. I had to cancel PT and I only got in one day of home rehab. I am thankfully slowly starting to feel better. But again, I do not want to complain. It was definitely worth the crash…
  • No doctors. This upcoming week, I am back at my intensive doctor and therapy schedule.
  • I’m sleeping a little better now…3:30 am has been my buddy this week so hopefully I will start sleeping through the nights again. Every single symptom is better when I sleep. I’m sure many of you can relate.

Five For Friday 4/11/14

Written by Katie. Posted in Five For Friday

2 weeks behind! Life got super crazy and I am now finally catching my breath and feeling human again…

1. Medical Stuff:

  • 1 Day of PT. I needed a lot of cranial work.
  • 1 Day of Home Rehab.
  • VERY little sleep. At times, it was a big struggle with tears, and yucky-ness, but I made it through.

Five For Friday 4/4/14

Written by Katie. Posted in Five For Friday

Hellooooo Spring Break! I welcome you with wide open arms!

1. Medical Stuff:

  • No PT.
  • One day of Home Rehab. Not enough rehab this week.
  • One sick day taken. My blood pressure and heart rate were not cooperating, and I felt my body shutting down. I knew I had to take a day or I would be in big trouble.