Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Five For Friday 8/28/15

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 Day of PT. I learned my muscles in the front of my neck are weaker than WEAK, and are in desperate need of retraining.
  • 1 Day of Home Rehab.
  • I saw my shrink on Thursday. 15 years together and going strong…I say it a lot. Working on mental health is just as important as working on physical health. No shame in that game.

Five For Friday 8/21/15

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 2 Days of PT. Holy cow, it’s a workout. So far, it has been a wonderful balance of cardio, strengthening, and manual medicine. And for the record, I hate planks. Hate them.
  • 1 Day of Home Rehab.
  • I saw Larry on Tuesday. Like every August, we did my medical accommodation letter for the upcoming school-year. Larry also did quite a bit of work on my ribs. I felt like I could move and breathe afterwards. I’m feeling pretty thankful for my medical team these days.

Five For Friday 8/14/15

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 2 Days of PT. I started a new place for physical therapy…My break from PT is officially over. I am really encouraged by my new therapists and their knowledge of EDS. It sounds like a handful of fellow EDS’rs go there as well. Looking forward to learning more about how to manage this crazy, weird illness called EDS.
  • 1 Day of Home Rehab.
  • 6 month dental cleaning. Still no cavities but I had a little more bleeding, which my dentist thinks is due to EDS and the fact that the gums are made of connective tissue.

Five For Friday 8/7/15

Written by Katie. Posted in Five For Friday

Vacation week is over…: ( Trying not to be too sad…we made some pretty incredible memories.

1. Medical Stuff:

  • Not much going on, on the medical front this week. No docs, no PT, and I pretty much failed on home rehab while I was away. Sigh. Back at it TODAY. NO excuses.
  • Still waiting for my Domperidone. It is coming from England, to Canada, and then to me. Hopefully any day now…

Five For Friday 7/30/15

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 3 Days of Home Rehab.
  • I take Domperidone for Gastroparesis. I called this week to fill my prescription at the compound pharmacy I use, and was told the US can no longer make it. SO weird. So, after many calls to U of M and the Canadian Pharmacy, it is now coming from England, then to Canada, and then to me. I should have it by the end of August. In the meantime, if I look pregnant, I am not. Just for the record.

EDS Tweets

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POTS Tweets

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