Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Five For Friday 4/13/18

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 2 Days of Home Rehab. We have a working treadmill! I hear about so many peeps who hate treadmills, but I love that thing with my whole EDS heart.
  • 1 Day of PT. My left first rib is so messed up, I could barely exercise. Gah. My PT tried his best to work it back into place, and we did stim and heat, but I am wearing my collar as we speak, to try to get it to continue to calm down. My ribs and me. A constant battle. That shall be my book title one day.
  • I had my first acupuncture appointment with Dr. Tan. I fell asleep! I think that is a good sign…I’m going back Thursday, and am going to try weekly for a while.

Five For Friday 4/6/18

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • Spring break catch up on doctor’s.
  • Thursday we went to Toledo to see Dr. Grubb for my yearly appointment. I am doing well, and only have to take my Propranalol and Midodrine as needed now. Thank you, body. I will take it. I will continue my saline infusions regularly, and take my meds on bad days. I’ve come a long way since when I started in 2010…in a wheelchair. Grateful.
  • I got my stitches out from my cyst removal.
  • Got some lab work done I was putting off.
  • Refilled tons of meds.
  • Scheduled weekly acupuncture for the next month. I’m excited!
  • 2 Days of Home Rehab. Cardio outside in the SNOW, strengthening exercises inside in the WARMTH.

Five For Friday 3/30/18

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • One day of PT. Light walking and bike. Circuit training and OMM.
  • 3 Days of walking the neighborhood with my sisters’s dog, Gru. Floor strengthening and light weights exercises after each walk. A good change up from my usual home rehab.
  • I had a cyst (I’ve had for about five months) removed from the top of my head on Thursday. Always something…Two stitches, some soreness, but my head is flat again ; ) I sure know how to kick off spring break off right! Stitches out on Monday!
  • Insomnia and weird dreams galore. Sigh.

Five For Friday 3/16/18

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 day of PT. Pretty typical session. Cardio. Strengthening. Circuits. My PT worked my ribs back into place. I ended with heat and stim.
  • 2 Days of Home rehab. Still no treadmill for those following along…they dropped it AGAIN. So, back outside hitting the pavement, a couple of 21 Day Fix workouts, and light weights, and full body strengthening.
  • Every time I get new glasses with a small change in my prescription they make me feel nauseous and carsick. Well, this happened again on Wednesday when I picked up my new reading glasses. I am going to try and wear them in small doses this weekend but my gut says I will most likely be back at their office next week : (

EDS Tweets

Twitter response: "Invalid or expired token."

POTS Tweets

Twitter response: "Invalid or expired token."