Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Five For Friday 11/21/14

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • I had a better week. Especially with sleep, and therefore keeping symptoms at bay. Hoping this continues, and feeling grateful for better days.
  • 2 Days of Home Rehab.
  • I saw Larry on Tuesday. He put my ribs back into place and did cranial OMM on me.
  • I saw Dr. Rosen (shrink) after Larry on Tuesday. We discussed my recent med adjustments, and the best ways to cope through this flare. We came up a with a log I will be keeping for now, with information about each day (flares, no flares, where I am at in my cycle, medication info, how I feel, any differences to note, etc…)
  • I spent a lonnnnnggggg, but very worthwhile day in Toledo on Thursday seeing Dr. Grubb for POTS. I will try and blog about my appointment later.

Just Another Curveball

Written by Katie. Posted in Challenges, Chronic Illness, POTS Awareness

It’s no secret that I have been struggling with the ups and downs of POTS the last few months. More so than I have in a long time.

I’ve received a lot of questions, phone calls, emails, and concern from my amazing loved ones, so I thought it would be a good time to put a blog post out there. Plus, I miss writing.  It’s a wonderful way to communicate, help others understand, and to spread awareness which I believe in with all of my heart. Plus, it is simply a cathartic thing for me.

Five For Friday 11/14/14

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 Day of Home Rehab. That’s it. It was a pretty bumpy week with POTS.
  • I saw my gynecologist on Friday for my yearly. He doesn’t think my hormones are a major player in my increase in POTS symptoms right now. I know it may be weird to say, but I heart my gyno. He definitely cares about the whole person. That means a lot when you’ve seen many doctors.
  • I have a full week of appointments ahead: Larry, Psych, Dr. Grubb in Toledo. Hoping to get to the bottom of some of the issues I am having so I can get back to feeling my “normal.”

Five For Friday 10/31/14

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • I had to cancel PT on Monday. I felt sick after school, and was worried about driving.
  • 2 Days of Home Rehab.
  • I saw my shrink on Tuesday. It was a needed appointment to talk meds, and figure out how to cope with this latest flare. Love him.
  • I still had a week of struggling with POTS, and therefore sleep. I started a new med, and am really, really, REALLY looking forward to feeling like my body is somewhat cooperating with me again.

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