Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Five For Friday 4/22/16

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 Day of PT.
  • 2 Days of Home Rehab.
  • I had an infusion on Wednesday. I am starting to notice when I need to go. I begin to feel more POTS symptoms, and more fatigue. I am so grateful I am able to get fluids with ease. It really does feel like it helps reset my system.

Five For Friday 4/8/16

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 Day of PT. I am beginning to incorporate more breathing exercises into my program. I do way too much breathing with my ribs and chest, and need to do more with my diaphragm.
  • 2 Days of Home Rehab. The usual.
  • I saw my shrink on Tuesday…such a valuable hour.
  • I saw Larry for our monthly appointment on Wednesday. He did a lot of OMM work on my first rib, neck, and jaw…over an hour and 20 minutes. And we did a lot of laughing. Those appointments are my fave.

Five For Friday 4/1/16

Written by Katie. Posted in Five For Friday

What. A. Week. I felt like a hamster on a wheel for most of it. Whew.

1. Medical Stuff:

  • 1 Day of Home Rehab. That is it for the week. Fail.
  • 1 Infusion at Sparrow. So far, so good. It has definitely been worth the three hours of sitting for each one.

EDS Tweets

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POTS Tweets

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