Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Five For Friday 3/27/15

Written by Katie. Posted in Five For Friday

This one is gonna be short and sweet. I have a to-do list the size of an elephant.

1. Medical Stuff:

  • 1 Day of home rehab and no PT. Definitely not enough. Feeling it in my joints.
  • No eye twitch (Henry) in a week! Ear acupuncture is magical!
  • I saw my shrink on Thursday. As always, that hour helped me breathe better and see things more clearly. Love my mental health time.

Five For Friday 3/20/15

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 Day of PT. I was dragginggggg. Days like that, I greatly appreciate my PT’s tough love.
  • 2 Days of Home Rehab. Treadmill and floor exercises.
  • I had an OMM appointment on Thursday for cranial therapy. I told her all about Henry (my annoying left eye twitch that will not leave). She decided to do auricular therapy, or in other words, ear acupuncture. She put 3 needles in my left ear, and they actually just fell out this morning. I’ll be honest.  I was kinda skeptical at first, but I have had the most relief I’ve had in a month after she inserted the needles. The human body NEVER ceases to amaze me.

Five For Friday 3/13/15

Written by Katie. Posted in Five For Friday

I stayed home from school yesterday…to rest. My body has been telling me in more ways than one that it needed some recovery time…and I listened. Maybe I am getting a bit wiser in my older age : )

1. Medical Stuff:

  • I saw my Pulmonologist on Monday. I love when I hear the word “normal” from a doctor. My breathing tests were all NORMAL.
  • I saw Larry on Tuesday for more OMM; ribs, cranial, and TMJ.
  • 2 Days of Home Rehab.
  • I got my glasses back for the third time. It’s true! The third time IS the charm! They do not make me sick. Yesssss.
  • Going on my third straight week of my left eye twitching. I’m trying not to worry. But I’m Katie…I’ve named it Henry. I hope Henry goes away really, really soon.

Five For Friday 3/6/15

Written by Katie. Posted in Five For Friday

Whew! What a week! If I’m being honest, I do not think I’ve been this happy to see a Friday in a long time. I don’t think I’ve had this many tears in a long time.

BUT, if I were to find a positive in all of it, it is that I made it. And I’m smiling, and the sun is out, and I have two legs, and my family and friends are the best, and I have a job that I love, and I have medical insurance, and, and, and…Perspective, my friends. Sometimes I forget.

1. Medical Stuff:

  • 1 Day of PT. Lots of cranial work. Lots.
  • 2 Days of Home Rehab.
  • My echo-cardiogram was normal! Thankful!
  • My glasses saga continues. I took my glasses back to the eye doc. Long story short, they are getting made for a third time.
  •  I saw my shrink on Thursday. Fabulous timing.
  • A week of POTSy insomnia.  I keep repeating my mantra; it will pass…it WILL pass.
  • Day 9 of my left eye twitching. I told my Mom I think it’s Ebola. She laughed at me.

Five For Friday 2/27/15

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 3 Days of Home Rehab.
  • I picked up my new glasses. Bad news…they are still making me sick. What the heck?! I have never had this problem before. I will be making a call on Monday.
  • I had my 6 month dental cleaning. 33 and still no cavities!
  • I went to U of M on Tuesday to see my GI doc who specializes in Gastroparesis. I am managing fairly well, so he rewrote my Domperidone script (I only take it for flares), and we discussed going Gluten Free for a month to see how I feel. He busted out laughing when I blurted, “BUT I’M ITALIAN.” We talked about how it really is not that daunting, and we both came to the conclusion that it would be worth a month of trying.
  • Stupid, stupid, POTS induced insomnia. I don’t have time for no sleep!

EDS Tweets

Twitter response: "Invalid or expired token."

POTS Tweets

Twitter response: "Invalid or expired token."