Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Archive for January, 2011

Physical Therapy Week Two

Written by Katie. Posted in Physical Therapy

This week I feel I like I finally hit my stride with physical therapy.  I felt like I was an actual athlete again for a moment.  That feeling is a high, let me tell you.

This time around, it is comforting that there is a plan in place.  It is comforting that we actually know what is wrong. 

In my first round of PT from July to October, I would go to each session and we would try so many different things, not understanding why I was getting so sick with standing up exercises, and why it felt like my body just kept breaking down and falling apart no matter what I did.  I was living in a fear-gripped bubble at each session, as I was being tested for MS, ALS, other neuromuscular diseases, nutrition deficiencies, vasculitis, etc (throughout the same time frame of these therapy sessions)…

Gyno and EDS

Written by Katie. Posted in Ehlers-Danlos Appointments

Today I spent quite a while talking to my gynecologist.  I know it may be weird to some but I love my gynecologist.  He is in my top three doctors for the most kind, caring doctors I’ve ever seen (and as you know, I’ve seen a lot ;)

I made an appointment to see him after I returned from seeing Dr. Tinkle in Cincinnati.  One of Dr. Tinkle’s recommendations was to get on a second generation Progesterone birth control to see if it helps regulate my hormones and provides me with better joint stability.

Adios Week!

Written by Katie. Posted in Challenges

This week was a struggle.  I think I cried more this week than I have in a long time.  I have been pretty quiet on the blogging front, because I have tried to take Thumper’s advice of, “If you can’t say anything nice, don’t say anything at all…”

On Sunday, I knew this week was already going to be tough.  I had gotten used to having Brad around the last two weeks, and I knew I would have to adjust to being on my own again during the day, since he went back to work Monday.  That in itself, got me kind of down. 

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