Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Archive for February, 2011

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Written by Katie. Posted in Goals

Do you remember how one of my 50 goals for 2011 is to choreograph a dance?  Growing up, I was always choreographing with gymnastics friends and my sister, and it has always been a love of mine.  I helped my sister choreograph one of her last floor routines.  Dancing is definitely a hobby that I want to work towards to be able to do again with stamina. 

Thursday Bragging

Written by Katie. Posted in Physical Therapy

I’m sitting…ok lying here after PT trying to get my body to move but not having much luck.  I guess that is to be expected with my first PT session after prolo.  I did surprisingly well during therapy but I am definitely feeling it now.

On the Dysautonomia POTS FB page this morning, this status caught my eye:
“It is important that you recognize your progress and take pride in your accomplishments. Share your achievements with others. Brag a little. The recognition and support of those around you is nurturing.”  ~Rosemarie Rossetti


This quote was very timely today. 

Imported From Detroit

Written by Katie. Posted in Internet Favorites

For my own documenting sake, I wanted to post (in my opinion) the BEST commercial from The Super Bowl.  It gave me chills and goosebumps all at the same time.  I heard it on the radio coming home from Indiana yesterday, and it made me emotional all over again~Besides making me feel such a sense of pride as a Michigander, there’s just something about that guy’s voice that gets me every time.

"Making the Invisible, Visible"

Written by Katie. Posted in Ehlers-Danlos Awareness, Favorites

This pretty much sums it up.  Honestly, the first thing I thought of when I watched this, was “Welcome to my world.”  Out of all the videos I have watched and things I have read, this one has rang the most true for me…And she talks about struggling with POTS as well. I love, love, love that she is working towards a marathon.  Makes me wish I could hug her.

“We must embrace pain and burn it as fuel for our journey.” -Miyazawa

Written by Katie. Posted in Prolotherapy

 

It turns out the third time WAS the charm.  I finally had my first round of prolotherapy yesterday.  Going into it I had no clue what to expect except that people kept saying I would be in pain.  They weren’t lying. 


We got to the office and the nurse came and took my vitals.  Dr. Cantieri came in and we talked about what would happen, and he asked if I had questions.  Of course I did.  He answered everything like I will be using the Testosterone cream for probably about 8 weeks to help my body heal, I need to come back in three weeks for round 2, that I should not get discouraged if I do not feel much different after the first treatment….Dr. Cantieri explained that it is usually after the second treatment that I would be able to tell if the prolotherapy was making a difference.