Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Archive for March, 2011

The "What NOT to Do" Conclusion

Written by Katie. Posted in Challenges, Favorites, Memorable Experiences

Well, I do have to say that persistence does pay off.  I may have overreacted a lot bit, but not knowing to me is the WORST.  If I know I have something, then I can start to deal with it, but I do not do well with the waiting game.

I did not get a call yesterday and stressed, and cried, and prayed, and slept fitfully throughout the night.  I felt like I was back to the summer and the fall, waiting, and waiting for answers.  Thankfully, this morning I was called with the answer I was looking for.

What NOT to Do

Written by Katie. Posted in Challenges

Don’t doctor’s offices know that they are not supposed to tell a patient who happens to be the biggest worry wart on the planet that they have their results back for a pretty major test but they can’t come in for a results appointment until April 28th? In Indiana?

I usually take things in stride pretty well, but come on! 

Five For Friday 3/25/11

Written by Katie. Posted in Five For Friday

1.  Medical Stuff:

  • Prolotherapy round 3 was Monday.
  • 2 Days of Home Rehab.
  • 1 Day of PT
  • It is official~I will be seeing Dr. Grubb’s NP for POTS on April 20th.  I received the packet this week.
  • I am loving my new compression stockings.
  • Pelvic clocks, glute retraining, scapular exercises, and the recumbent bike are my new BFFs.

Roses and Thorns Round 2

Written by Katie. Posted in About Me

Rose:  There are a lot of fun things coming up that I am looking forward to.

Thorn:  I have junk in my chest and my Asthma is flaring up.

Rose:  The sun is shining today after quite a few gloomy days.

Thorn:  Since my ribs hurt, my PT did not allow me to do elliptical or treadmill work today.

EDS Tweets

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POTS Tweets

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