Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Archive for May, 2011

Deja Vu

Written by Katie. Posted in Ehlers-Danlos Awareness

I know this is long, but if you have a chance to watch it, please do.  It just might help someone.  As I watched, I could not get over all of the the similarities between her story and mine.  I laughed when she said “Why not me” because that is what I say too.  Awareness, awareness, awareness.  I can’t say it enough. 

Five For Friday 5/28/11

Written by Katie. Posted in Five For Friday

I know, I know, I am late…My excuse is I have been in Georgia, got home yesterday, and had enough energy left to watch the Modern Family finale, and pass out on the couch.  After a full night’s sleep, I am moving slow, but back in action.

1.  Medical Stuff:

  • 1 day of PT
  • 2 Days of Home Rehab
  • Monthly appointment with Larry.
  • Was given a prescription for waist high compression stockings.

Energy Smarts

Written by Katie. Posted in Ehlers-Danlos Awareness, My Creations, Other Appointments, POTS Awareness

I had my monthly Larry appointment today.  At my April appointment, Larry graded my Apollo 13 homework assignment he had given me after I spent my March appointment with him in serious meltdown mode tears about life in general.  After I received my A++, Larry gave me another assignment, which was due today.  My assignment was to show some kind of scale that represented things I COULD do on a 0%, 25%, 50%, 75%, and 100% energy day. 

This assignment was meant to help me reframe my thoughts.  So instead of getting upset and saying something like, “Oh my goodness, it’s a 25% energy day and I can’t dust the house,” I could instead look at it as, “It may be a 25% energy day but I CAN do a load of laundry, some floor exercises, and post on my blog.” 

EDS Tweets

Twitter response: "Invalid or expired token."

POTS Tweets

Twitter response: "Invalid or expired token."