Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Archive for July, 2011

MIA

Written by Katie. Posted in Random

I am sorry, blog, but I will be pretty neglectful for the next two weeks. I am busy working on giving you a prettier, more informational, more loving home.  Therefore, most of my time this week will be occupied working on this project.  I am also traveling to Mishawaka tomorrow for round 7 of prolotherapy, so I will be out of commission for the next couple of days. 

A Heartfelt Letter Written by a Friend

Written by Katie. Posted in POTS Awareness

I read this letter this morning, which was written by a fellow POTSy friend.  It is beautifully written, honest, and REAL.  I found that it reflected a lot of what I have also tried to express to others this past year about having POTS.  I encourage you to read Susan’s letter if you have the time.  As tears streamed down my face as I read, I just kept thinking, “Thank you, Susan,” for putting into words the emotions that come with redefining life after being diagnosed with this crazy thing called Dysautonomia. 

http://dysautonomiadetour.blogspot.com/2011/07/with-me.html

Heat and Tunes

Written by Katie. Posted in Music

The heat can break any time now.  I have been experiencing a whole new level of fatigue lately and I am convinced that it is because of this ungodly heat.  It’s really weird because even when I am in the air conditioning, it feels like my body still knows that the heat index is 105 degrees. 

Just something else I am learning.  Extreme heat + POTS = Bad combo for me. 

So glad to see relief is in sight by Monday. 

Since I have been spending a lot of time in the AC, I have been trying to work on a few pretty exciting projects, as well as immersing myself in music.  Here’s a few of my favorite tunes right now…

EDS Tweets

POTS Tweets