I recently received an email from a Mom whose daughter has just been diagnosed with EDS and POTS. She had questions about my exercise routine with POTS and EDS. It made me think about how I have really neglected this blog the last few months. I am honestly having trouble finding the time and the energy to keep everything updated, but I am going to try and do better. I feel it’s important; especially for awareness and documentation sake. When I think back to why I started this blog in the first place, one of the reasons was to document my journey for learning to live with EDS and POTS. When I was really sick, I remember looking all over the Internet for blogs that did the same. I found such comfort in reading about other people’s stories that were so similar to mine.
Archive for April, 2013
1. Medical Stuff:
- 1 Day of PT. I was able to get back on the Reformer after doing my cardio on the Elliptical. I find that I actually miss that “torture chamber” if I am away for it for more than a week. I think I have kinda, sorta fallen in love with it. It works my whole body; especially my core, while being kind to my joints. Now I just need to figure out how to get in more Reformer sessions during the week. (I never thought I would say that).
What a difference a week makes.
Last Saturday at this time, I was in a cocktail dress, with my hair and makeup done, surrounded by so much love and support, hosting Life as a Zebra Foundation’s second annual benefit concert with my sister.
This Saturday, I have just woken up, I am sitting with heating pads on my back and neck, and I am in my sweats, blogging and watching Knocked Up.
I am not complaining. Both are spectacular feelings.
Oh hey there, blog. Remember me? Sorry for the neglect…Life is crazy. I am currently living in benefit planning land. It’s fabulous. Interesting. Intense. A blessing. Stressful. And at times, it can be completely insane. But instead of making excuses, I’ll get right to the last couple of weeks…This will be a combined edition. The top 10 of the last two weeks.
1. Medical Stuff:
- 2 sessions of Physical Therapy, with lectures on pacing, along with all of my exercises. It is a beautiful thing when your therapist looks at you and says, “I know exactly what you need today. Sit down and listen.”
- One trip to urgent care due to POTS, stress, exhaustion, and dehydration. (Cue the physical therapy lectures).
- 5 Home Rehab sessions.
- One telephone conversation with Dr. Larry about what I need to do for me to survive.