Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Archive for May, 2013

Benefit Concert Speeches: 2013

Written by Katie. Posted in Chronic Illness, Ehlers-Danlos Awareness, Family, Favorites, Fundraisers, Invisible Illness, Memorable Experiences, POTS Awareness, Writing

For documentation sake, the following are Allie and my speeches from the Life as a Zebra Foundation’s second annual, “An Evening With Chris Trapper and opener, Joshua Davis Trio, to Benefit Invisible Illness Research” held at the Kellogg Hotel and Conference Center on April 13, 2013.

Five For Friday 5/17/13

Written by Katie. Posted in Five For Friday

1.  Medical Stuff:

  • 1 Day of PT in their new facility.  It’s beautiful.  I never thought I would say this, but I hope they move the torture chamber Reformer in soon.
  • 2 Days of Home Rehab.
  • I had my monthly doctor appointment with Larry.  He did the usual OMM on me.  I may be crazy but I always notice a relationship between less POTS symptoms after gentle cranial work.  Love it.

EDS Tweets

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POTS Tweets

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