Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Archive for September, 2013

Prolotherapy Through My Eyes

Written by Katie. Posted in Ehlers-Danlos Appointments, Ehlers-Danlos Awareness, Medical Team, Prolotherapy

I started prolotherapy treatments in 2011.  I have lost count as to how many I’ve had. I have learned along the way that prolotherapy is controversial in the world of EDS. The first EDS doctor I saw after I was diagnosed actually did not recommend it, although he admitted he did not know much about it. At that time, I was having a horrible time keeping my back and head supported without a neck or back brace. That doctor actually diagnosed me with cranial instability and sent me on my way with a referral to a spine surgeon, telling me he suspected the surgeon would determine that I needed a skull to C-3 fusion.

Five For Friday 9/27/13

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 2 Days of Home Rehab.
  • 1 Day of PT for filming a Life as a Zebra news story, a workout, and for a stern talking to by my PT about how I have worked too hard not to be pacing myself better when it comes to work and life in general. She is absolutely right. Working on it…
  • Zero doctor’s appointments.

Five For Friday 9/13/13

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 3 Days of Home Rehab/Strengthening/Lifting.  This is a huge improvement over last week.
  • I saw my OMM doctor on Thursday.  I had a fever which is weird because I wasn’t feeling terrible.  It was also one of those appointments when the nurse took my blood pressure, stopped, looked at me with concern and said, “I’m not sure how you are still talking to me with a blood pressure this low.” That was my cue to down some soy sauce and lie down.  Once, I saw the doctor, she worked from my pelvis to my neck.  Let me just say that for someone so hypermobile, it’s pretty crazy how stuck my OA joints (neck) get.

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