Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Archive for December, 2013

Five For Friday 12/27/13

Written by Katie. Posted in Five For Friday

What. A. Week.

Not in a bad sense whatsoever…It was just a bit crazy at times, extremely busy, and quite magical.

1. Medical Stuff:

  • No PT.
  • 2 workouts at the Michigan Athletic Club (My teaching partner gave me a 7 day “friends and family” pass so Allie and I lived it up at the MAC on Monday and Tuesday).
  • No doctors (2 weeks in a row. That must be some kind of RECORD).
  • I have started sleeping again (Knock on wood). Crazy how a break can help with that.

Five For Friday 12/13/13

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 3 Days of Home Rehab. I upped my incline on the treadmill by two levels this week to try to get more of a burn in my legs. I know that for me, the stronger my legs are, the better I do with both, pain control and POTS sickness. I’ll be back at PT on Monday.
  • I had my December Larry appointment on Tuesday, which included lots of cranial and jaw OMM. One of the residents came in to talk to me first. I could tell I was confusing the poor guy more and more, as I answered his questions. When he left the room to see if Larry was ready, I heard him say to someone, “I have never seen someone like her before. I think I need some help with this patient.” Ha! In my opinion, at least he could admit it, and asked for guidance. I think it would be better if more doctors had the courage to do so.  SIDE NOTE: I have experienced a lot of pain in my life, but jaw OMM has to be up there with the worst. Holy tears in my eyes. It is amazing though how much better I feel afterwards.

Five For Friday 12/6/13

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 3 Days of Home Rehab. My PT is in North Carolina so I was on my own this week.
  • It was a POTSy, insomnia week. It never fails. My monthly womanly visitor=insomnia and increased POTS symptoms. Not cool. Not cool at all.
  • I saw one of my OMM doctors on Friday. She did some intense cranial work which always makes me feel better. She is also really pushing for me to go gluten-free for six weeks to see how I feel. Are there any other EDS’rs or POTSies out there who have thoughts or experiences about this? My doctor believes it would be beneficial in calming my sympathetic nervous system down since I already know I have a gluten sensitivity, and with having POTS, my autonomic nervous system is already out of whack.

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