Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Archive for March, 2016

Five For Friday 3/25/16

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 Day of PT. Cardio, scap strengthening, and gentle manipulation on my neck.
  • 2 Days of Home Rehab. High incline treadmill work and floor strengthening with light weights.
  • I had an OMM appointment on Thursday. My jaw and sacrum were dislocated so she spent the time working on getting me back into place.

Five For Friday 3/11/16

Written by Katie. Posted in Five For Friday

1. Medical Stuff: It was just one of those weeks when I felt like a lived at the doctor.

  • 1 Day of Home Rehab. Treadmill! Side walking and backwards walking too…
  • I saw Larry on Tuesday. He just makes going to the doctor a blast. We laughed so hard as he worked on my neck, head, and jaw. He’s good for the body AND mind. Those kind of doctors are gems.
  • I had my second infusion on Wednesday. I am learning. Get it in my non-dominant hand, and I can still work on the computer. I did feel much better after both bags of saline.
  • Brad and I traveled to Indiana Thursday night for a Friday morning appointment with a new doc; Dr. Klauer who specializes in TMJ and sleep disorders. Wellll, after four hours, a VERY extensive exam, and going over all of the results, we came up with a plan: 1) I need a sleep study to see if EDS is affecting my breathing when I sleep. 2) I have a severe deviated septum and bone spur and need surgery. (Sigh). 3) I am having a new splint made for my jaw pain that will take all of the pressure off the back of my teeth and mouth to allow my jaw muscles and ligaments to relax at night. Let me just say that they did an amazing job, and I really liked Dr. Klauer, but as many of you know, having chronic illnesses is NOT cheap.

Five For Friday 3/4/16

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 Day of PT. Cardio, scap exercises, and OMM on my jaw.
  • 1 Day of Home Rehab. Treadmill, light weights, floor strengthening.
  • I saw my dentist for a 6 month cleaning. No cavities!
  • I saw Dr. Grubb on Wednesday. It was a long day, but a valuable day. I just love that man as a doctor and a person. Basically, my management plan for POTS is remaining the same EXCEPT now I have a prescription to get hydration infusions every week to help increase my blood volume, and hopefully make me less symptomatic. You have no idea how excited I am about this! There have been so many times when I have known in my heart that I needed fluids to help my flares, but was sure if I walked in somewhere and asked for fluids, I would not be taken seriously. I am hopeful that these infusions will improve my functionality. So grateful.
  • Insomnia struggles. Have I mentioned that I hate insomnia struggles?

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