Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Archive for May, 2017

Five For Friday 5/26/17

Written by Katie. Posted in Five For Friday

Holy MOLY, this was a crazy week. But I’m still standing…Barely.

1. Medical Stuff:

  • Not proud of this, but this was one of those weeks where I had so much other stuff going on that I had to cancel PT and miss one day of Home Rehab just to survive/nap/rest instead. Blah.
  • 1 Day of Home Rehab. Lots of cardio and scap strengthening.
  • I saw my shrink on Thursday. It is always the days I think I don’t need him, when I realize I need him the most.
  • I am sleeping like crap. Too much going on.

Five For Friday 5/19/17

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • One Day of PT. My thoracic was super locked up. We don’t usually crack me, but that day was an exception.
  • No Home Rehab. This is not an excuse; there is never an excuse, but my week was insane and I didn’t get it in.
  • No doctors. Just a lot of everything else!

Five For Friday 5/5/17

Written by Katie. Posted in Five For Friday

Happy Cinco de Mayo! I am celebrating by pretending my Miralax/Gatorade mixture is a Margarita! Oh, EDS, you are so fun sometimes!

1. Medical Stuff:

  • 1 day of PT. The usual.
  • 2 Days of Home Rehab. The usual.
  • Still navigating our new insurance. It feels like a full time job at times. Ugh.
  • I saw my OMT doc. My ribs and head needed much love. Our goal was to get me headache free before I left. I did feel better so I took that as a win.

EDS Tweets

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POTS Tweets

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