Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

A Caring Comment

Written by Katie. Posted in Ehlers-Danlos Awareness, POTS Awareness

I was excited to login to my blog, and see a personal note from Dr. Driscoll herself about the progress, and developments of her research.  Dr. Driscoll is a zebra herself who devotes so much of her time advocating for, and researching various diseases and the possible connections between the diseases of Multiple Sclerosis, Ehlers-Danlos Syndrome, POTS, and CCSVI, to name a few… 

Thanks for taking the time Dr. Driscoll, to comment on one of my posts.


“Thank you for posting this, Katie! We are moving full speed ahead! I am working on Part 2 of The Driscoll Theory which explains how hydrocephalus, mast cell disorders and CCSVI are all related. Cool? Many of us go on to develop M.S. (where I was headed), and M.S. researchers have also had positive responses to treatment with this theory and will be joining me on some clinical trials. I can hardly wait to show you Part 2 and how most of the pieces of the puzzle were already out there, but they were scattered in the wind. We’ll line them up! Thanks again for your support. Gentle hugs…”

~Dr. Driscoll

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Comments (1)

  • Meghan


    That’s so awesome she wrote you. Keep writing….you help, reach and inspire more people then you realize!!

    Love you, love you


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