Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Author Archive

Five For Friday 1/17/20, 1/24/20, 1/31/20, & 2/7/20

Written by Katie. Posted in Five For Friday

Four missed Fridays. I don’t even know where to start.

1. Medical Stuff:

  • PT. 4 sessions. All paid out of pocket. Because, yes, I am still fighting, and yes, my case is still under review.
  • Working my way through Morning Meltdown workouts. Almost finished with phase 1, which means I have about 80 workouts left.
  • Two infusions.
  • One shrink appointment.
  • I decided to get back into acupuncture. I’ve had three sessions so far and I LOVE IT…more-so than I did before. Puts me to sleep every time.
  • Three lab draws.

Five For Friday 1/10/20

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • Still fighting insurance. Still paying out of pocket for PT. My doctor wrote me an amazing letter advocating for me. We will see, but rest assured, I am not backing down for anything.
  • I had an infusion. Two bags of fluid. I finally remembered to bring my blanket and it made those three hours so. much. better.
  • One session of PT. Body was a mess after three weeks away. Thank God for manual medicine.
  • I began Morning Meltdown. I committed to 100 workouts. I look pretty ridiculous because I do it in my sports bra, underwear, tennis shoes, neck, and back brace in my basement. I figure sweat is sweat, right?! There’s no wrong way to get it done.

Five For Friday 12/20/19, 12/27/19, & 1/3/20

Written by Katie. Posted in Five For Friday

The holidays put me wayyy behind!

1. Medical Stuff:

  • I had three weeks off of PT. THEN, I received a letter that my PT will no longer be covered because some doctor who I have never met read a few notes from my file and determined I can do a home program. Gah. GAH. GAHHHHHH. I am currently fighting this and have my medical team fighting along with me. I will update when I can on the outcome. Sidenote: There are not many things that get me this worked up than insurance issues. The system is so messed up.
  • One shrink appointment. Getting my head on straight heading into 2020. Med management too.
  • I did not do too well with home rehabbing over the holidays. I got in 3, maybe 4 sessions in the last few weeks.  Oof. Back on the wagon now.
  • I’m probably forgetting something since it’s been three weeks but I’m too tired to get up and look. Anyone else just want a nap?

Five For Friday 12/6/19 & 12/13/19

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • Two days of PT: Cardio. Strengthening. Manipulative medicine which has consisted of getting my stomach working, calming down my thoracic, and putting my first ribs back in place.
  • Five Days of Home Rehab. Lots more running. Lots more sweating. I love it.
  • One Infusion. They gave me a huge fluffy blanket and it was glorious. GLORIOUS.

EDS Tweets

Twitter response: "Invalid or expired token."

POTS Tweets

Twitter response: "Invalid or expired token."