Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Author Archive


Written by Katie. Posted in Favorites, Memorable Experiences

I love my birthday.  I always have.  There is a running joke in our family that my birthday is the “Month of Katie.” I have always loved to prolong my birthday well into the month of November.  I am not sure why I love it so much.  I just do.  So this year, with Brad and my family knowing full well that I love my birthday, they kept asking me what I wanted for my birthday, what I wanted to do for it, yadda, yadda, yadda…

Because I wasn’t doing so hot at that time, I was being a major grump about it. I kept saying, “I don’t want to do anything.” Or “I’m not celebrating 29 until I have a diagnosis.” or “I just want to skip it.” 

11/14/10 Thankful

Written by Katie. Posted in Thankful

Today I am thankful for my faith.  I am thankful that through this tough time I have had my faith to lift me up, and I am thankful that I feel that in the last year I have continued to grow in my faith.  I am thankful for Father Mark’s homily about perseverance today. It was just what I needed to hear. I am thankful that in church today we sang, “Be Not Afraid.”   It was just what I needed to sing. 

What Does Sick Look Like?

Written by Katie. Posted in Editorials, Favorites

This post is not meant to offend anyone.  But it is something that I constantly experience on a day to day basis.  I know in my heart people mean well.  And that they want to pay me a compliment.  But I also feel that at times people are trying to make sense of it all when I am told,  “But you don’t look sick.”  “But you look so great.”  “I’ve never seen you look better.” “But you look so beautiful.”

EDS Tweets

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POTS Tweets

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