Today I am thankful for my diagnoses. After many, many months I finally have my answers: POTS and Ehlers Danlos Syndrome. I am thankful that the phase of figuring out what is wrong with me is finally over. I am thankful that it only took me 11 months to get a POTS and EDS diagnosis since it often takes others years to be diagnosed with POTS and EDS because there is not much known about these disorders.
After 11 long months, I have my first answer. I went to Cleveland yesterday to get the results from my autonomic nervous system testing. I went into the appointment with low expectations, most of all to protect myself. I had been through so many other appointments to only find myself frustrated and disappointed when I was told that the test results did not show anything. The doctors would tell me to celebrate the negative results but honestly this was hard when I still knew something was really wrong, and I didn’t know what it was. I would leave many specialist’s office feeling like a crazy person when I was told my tests were normal, or that they came back ”beautiful,” while I was still having crazy symptoms that made me sick.
Today I am thankful for the nurses and doctors I have seen in the last year who have gone above and beyond to help me. I am thankful for honest doctors who are straight with me. I am thankful for doctors who let me know in their own way that they will do what is in their power to help me. I am thankful for doctors who are not afraid to admit that my symptoms are beyond their expertise so they help find me someone who can fit my needs.