Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Just Another Curveball

Written by Katie. Posted in Challenges, Chronic Illness, POTS Awareness

It’s no secret that I have been struggling with the ups and downs of POTS the last few months. More so than I have in a long time.

I’ve received a lot of questions, phone calls, emails, and concern from my amazing loved ones, so I thought it would be a good time to put a blog post out there. Plus, I miss writing.  It’s a wonderful way to communicate, help others understand, and to spread awareness which I believe in with all of my heart. Plus, it is simply a cathartic thing for me.

30 Things: Invisible Illness Week 2013

Written by Katie. Posted in About Me, Chronic Illness, Ehlers-Danlos Awareness, Invisible Illness, POTS Awareness, Questions

Hi friends! Invisible Illness Week is fast approaching (September 9-15). I was asked to fill this out, and just before I was about to respond with, “I already did it two years ago,” I thought about it and realized a lot has changed in two years.  Therefore, some of my answers are different and some have remained the same.  I wanted to post it early, before school starts, since I am unsure how my body will respond or adjust to being back to work again.  So here you go. My 30 things.

EDS Tweets

Twitter response: "Invalid or expired token."

POTS Tweets

Twitter response: "Invalid or expired token."