Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Gyno and EDS

Written by Katie. Posted in Ehlers-Danlos Appointments

Today I spent quite a while talking to my gynecologist.  I know it may be weird to some but I love my gynecologist.  He is in my top three doctors for the most kind, caring doctors I’ve ever seen (and as you know, I’ve seen a lot ;)

I made an appointment to see him after I returned from seeing Dr. Tinkle in Cincinnati.  One of Dr. Tinkle’s recommendations was to get on a second generation Progesterone birth control to see if it helps regulate my hormones and provides me with better joint stability.

Ehlers-Danlos Round Two

Written by Katie. Posted in Ehlers-Danlos Appointments

I spent much of the day today on the phone with doctors from South Bend, Indiana.  After I returned from seeing Dr. Tinkle, I talked everything over with Larry and we agreed that it would be best to get a second opinion about my neck, prolotherapy, and the overall management of EDS.  Dr. Lavallee is a sports medicine doctor in South Bend who also specializes in EDS.  He is not only an expert in EDS, but he also has it himself.  When I was first researching EDS specialists; three doctors kept coming up as THE EDS doctors to see-Dr. Tinkle, Dr. Lavallee, and a doctor in Maryland. 

Ehlers-Danlos in Cincinnati

Written by Katie. Posted in Ehlers-Danlos Appointments

Well, I have been putting this post off because I knew it was going to be a long one.  One with a lot of information; some of which I honestly did not want to hear.  Since my appointment last Thursday, I have been mentally processing a lot of the information I learned at my appointment with Dr. Tinkle. This “processing” has led to a few mental breakdowns emotional moments, and I felt it was best to blog about it when I was feeling much more positive and ready to break it all down in writing

Awesomeness

Written by Katie. Posted in Ehlers-Danlos Appointments

So, I think this merits it’s own special blog post.  After I got home from Fort Wayne today from getting a T9 nerve block, I had a message on my phone to call the famous Dr. Tinkle’s office. 


To back up, when I thought I was going to be diagnosed with Ehlers Danlos, I got back to hard core researching, and realized that Dr. Brad Tinkle is pretty much a God to EDS patients. 

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