I recently received an email from a Mom whose daughter has just been diagnosed with EDS and POTS. She had questions about my exercise routine with POTS and EDS. It made me think about how I have really neglected this blog the last few months. I am honestly having trouble finding the time and the energy to keep everything updated, but I am going to try and do better. I feel it’s important; especially for awareness and documentation sake. When I think back to why I started this blog in the first place, one of the reasons was to document my journey for learning to live with EDS and POTS. When I was really sick, I remember looking all over the Internet for blogs that did the same. I found such comfort in reading about other people’s stories that were so similar to mine.
Ehlers-Danlos Syndrome is genetic. Of the genes. Often inherited (though not always). This, I get.
What I have always wondered is if my EDS was in fact inherited, where in my family did I get it from?
My siblings don’t have it. My parents don’t have it. For three years, I have not known of anyone on either side of my family who has EDS.
Yesterday Brad and I took off for Mishawaka for another round of prolotherapy. I was so exhausted, having gotten home from the Madonna concert at 3, and then getting up at 7 to leave.
I have decided to join the National Health Blog Post Month Carnival. I just may be crazy with the way I have been feeling and with everything that is jam-packed on my November calendar, but I am going to do the best I can. The challenge is to post everyday for the month of November, using the daily health prompts provided by WEGO Health.