Happy Rare Disease Day everyone! I’m off to Mishawaka to celebrate with lots and lots of shots…or should I say injections
I received Dr. Lavallee’s notes from our visit and something that took me by surprise is that he recommends I get a Medical Alert ID Bracelet….I have many questions about this one..
What would it say? POTS and EDS? Would Asthma have to be a part of it too?
This pretty much sums it up. Honestly, the first thing I thought of when I watched this, was “Welcome to my world.” Out of all the videos I have watched and things I have read, this one has rang the most true for me…And she talks about struggling with POTS as well. I love, love, love that she is working towards a marathon. Makes me wish I could hug her.
I have gotten more questions about what exactly Ehlers Danlos is. While I am still learning, and honestly there are many aspects that are still confusing to me, I found this video helps explain EDS more.