Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Five For Friday 5/4/12

Written by Katie. Posted in Ehlers-Danlos Awareness, Five For Friday

1. Medical Stuff:

  • 1 Day of PT.  I asked Katie to kick my butt and she delivered.  Sometimes I am not sure if the Reformer is a beautiful thing or an evil thing. The jury is still out.
  • 2 Days of Home Rehab.  I’m happy to report that I did a much better job this week staying on top of doing my cardio and strengthening.  On to next week.
  • No doctor’s appointments!

2.  Last Saturday,

The \”Speeches\”

Written by Katie. Posted in About Me, Ehlers-Danlos Awareness, Favorites, Fundraisers, POTS Awareness

For documentation sake, here are Allie and my speeches from “An Evening with Chris Trapper to Benefit Invisible Illnesses,” which was held on April 14th at Lou and Harry’s Sports Bar and Grill.

Katie’s Speech:

“Starting to feel better, so bring on the weather I feel I’ve prepared for anything…

We are the ones who are never afraid, We need no rehearsal to dance. We’re well aware this may be our last chance,

So bring on the avalanche.”

 That was an excerpt from one of Chris’s songs, “Avalanche.”  For the last two years I have been learning how to face my Avalanche.  And you know what? The fact that I am able to stand on my two feet in front of you tonight instead of in my wheelchair, is one of the reasons for me to continue to fight to face my Avalanche.

EDS Tweets

Twitter response: "Invalid or expired token."

POTS Tweets

Twitter response: "Invalid or expired token."