Allie and I have danced together since the time she could walk.

We have continued to dance through gymnastics.  Through celebrations.  Weddings.  Funerals.  Sicknesses.  Concerts.  Recovery.

Dear friends, family, supporters, and fellow zebras,

Finally.

After months, and days, and hours, and hours…and more hours of planning, we are finally ready to launch ticket sales for our 2nd Annual, “An Evening with Chris Trapper to Benefit Invisible Illness Research.”

Ehlers-Danlos Syndrome is genetic.  Of the genes. Often inherited (though not always). This, I get.

What I have always wondered is if my EDS was in fact inherited, where in my family did I get it from?

My siblings don’t have it.  My parents don’t have it.  For three years, I have not known of anyone on either side of my family who has EDS.

Christmas. It has always been one of my favorite holidays.  I love everything about it; having that special feeling of peace and hope, spending time with family, Christmas mass, the food, the traditions, the love that is felt all around…

“KATIE, Tell me you have spoons.  TELL me you have spoons. TELL ME YOU HAVE SPOONS!”

This is how it all began, after I finally called my cousin, Jen back after she had already tried to reach me 4 times.