So you may have seen the post back in March about the Life as a Zebra Documentary that was released. You may have even watched it…related to it in some way…or even learned something.

For the month of February, I was followed by cameras as Max, the reporter, documented my life with EDS and POTS. 

Last summer when I found out Chris Trapper had agreed to headline our 2nd Annual, Life as a Zebra Foundation Benefit Concert, I asked if he would be willing to let me interview him.  He immediately agreed.  Chris has been a source of support since even before we started the foundation.  He headlined our first benefit when Allie and I really had zero clue what we were doing.  Luckily, because of many people including Chris, it ended up being a very successful night.  Chris has done different interviews for us to help promote the concerts, and therefore the foundation.  He has been nothing but kind, open, generous, and encouraging as Allie and I work to hopefully make a teeny-tiny difference in this crazy, ginormous world, for a cause that is extremely personal to both of us.  Anyways, not only am I one of Chris’s biggest fans as a singer-songwriter, but I am one of his biggest fans when it comes to Chris as a person.

I hope you are able to join us at the benefit concert on April 13 to hear Chris Trapper’s beautiful music, and watch him mesmerize the audience as the expert performer that he is. If the benefit concert is not in the cards, do yourself a favor and check out his music…and check out his tour dates.  He may be coming someplace near you.  You won’t be sorry.

The following is my interview with Chris Trapper.

Here it is zebra friends and family!

Let’s face it.  It’s hard to feel attractive in your own skin when you feel like your body is turning on you. 

Topic: Write about your advice for someone caring for a patient with your condition

Caretakers in my opinion are unsung heroes.  Often it is the person who is sick that receives the caring phone calls, messages, care packages, etc.

My caretakers are the ones who have been behind the scenes, making phone calls for me, sitting with me during doctor’s appointments, driving me around the Midwest to see specialists, being there when I fall apart, making meals, bathing me, encouraging me, picking up prescriptions, supporting me, taking on more household duties, pushing my wheelchair, being my cheerleader, and the list goes on, and on, and on…