Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Our 2011 Rehash

Written by Katie. Posted in About Me, Favorites

Just for fun.  And I even got Brad to play along again.

Did you keep your new year’s resolutions, and will you make more for next year?

Brad-I exercised more through the spring and summer and then fell off the wagon once school started.  So, my 2012 resolution is to exercise consistently, even when life gets busy.

Katie- I like to make goals to work towards instead of resolutions.  I accomplished over half of the goals I set in 2011.  I will be making 50 more goals for 2012.  Some will carry over from 2011.

In Honor of Memorial Day: An Essay to Remember

Written by Katie. Posted in Family, Favorites, Inspiration

I have talked with quite a few family members about the power and emotion that is evoked from this piece.  I have gone back and re-read it over and over again.  Some of you have already read it, but I know that some of you have not.  My sister’s boyfriend, Gabe, had posted this essay as a comment on a post I did about “What are awesome things in your world?”  After reading his comment for like the 37484 time tonight, I finally decided that it belonged in it’s own post.  It is something that I want to document so that I can go back and read it whenever I need a dose of what honor is all about.

An Ode to My Thighs

Written by Katie. Posted in About Me, Favorites, Thankful

To My Lovely Thighs:

When I started gymnastics, I quickly realized that I was one of the gymnasts with ”the big thighs”.  I grew to hate you.  Through elementary school, through middle and high school, and through college, I always wished you would go away and I would magically wake up with skinny girl legs. 

Walk On

Written by Katie. Posted in Favorites, Memorable Experiences, Music

Music.  Relationships. 

Relationships.  Music

These are the two things that have gotten me through this past year without going crazy.  These are the two things that I lean on heavily everyday for my survival.  For my sanity.  For my motivation and inspiration.  For my Faith.

I could write for hours and hours about both of these topics, and as I continue to blog, I know that they will keep surfacing as major players in my life.  U2 is something I have been meaning to write about since I saw them in concert at Spartan Stadium a little over a week ago.  It is funny because the first 27 years of my life, I liked U2.  They made up a chunk of my running playlist.  I would watch some of their concerts on Palladia.  I knew and admired that Bono was really involved with various charities. 

A Different but Similar Perspective

Written by Katie. Posted in Editorials, Favorites

My friend Ila, who also has EDS and Dysautonomia recently sent me this blog post she came across to read (If the rest of this post is going to make sense, then you should read the post from the link above first).  I read it a few times, and have thought long and hard about this person’s perspective.  I totally respect what this person has to say and her experiences with both Dysautonomia and EDS.  There are so many things she says that I found myself nodding my head in agreement to.  However, there are a few things from this post, that I would like to just bring a different perspective to.  I feel that we must keep in mind that when someone blogs, it is one person’s perspective, based on their personal and individual experiences.   


I, myself, have to realize that when I post about EDS and POTS, it is from my experiences, and my experiences only; MY symptoms, My struggles, My triumphs, and where I am on the very wide spectrum of both disorders.  I know there are going to be things I say along the way that people disagree with, but when I started this whole blogging thing, I knew that was all part of the “game.”  

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