Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.


Written by Katie. Posted in Favorites, Memorable Experiences


Two years ago Allie almost died on Christmas night and my Dad had Prostate cancer. You can read Allie’s story here.  Christmas has meant so much more to me ever since.  It probably sounds cliche’ but between Christmas two years ago and this Christmas I finally get it. Like really, really get it. Christmas means FamilyFriends.  Forgiveness. Giving.  Love. Hope. Faith.


Written by Katie. Posted in Favorites, Memorable Experiences

I love my birthday.  I always have.  There is a running joke in our family that my birthday is the “Month of Katie.” I have always loved to prolong my birthday well into the month of November.  I am not sure why I love it so much.  I just do.  So this year, with Brad and my family knowing full well that I love my birthday, they kept asking me what I wanted for my birthday, what I wanted to do for it, yadda, yadda, yadda…

Because I wasn’t doing so hot at that time, I was being a major grump about it. I kept saying, “I don’t want to do anything.” Or “I’m not celebrating 29 until I have a diagnosis.” or “I just want to skip it.” 

What Does Sick Look Like?

Written by Katie. Posted in Editorials, Favorites

This post is not meant to offend anyone.  But it is something that I constantly experience on a day to day basis.  I know in my heart people mean well.  And that they want to pay me a compliment.  But I also feel that at times people are trying to make sense of it all when I am told,  “But you don’t look sick.”  “But you look so great.”  “I’ve never seen you look better.” “But you look so beautiful.”


Written by Katie. Posted in Favorites, Memorable Experiences

So I just have to tell this story because it gets me teary-eyed every time. 

Last week when Brad and I were on the road to Cleveland to go for my autonomic nervous system testing, my Mom called to see how my day was going.  She and my Dad had been in Philly visiting Kristen, Jake, and the beautiful Cecilia Jane.  They were headed to BWI airport and we both still had a couple hours left to be in the car. At the moment she called I was struggling.  My back and head hurt, I was nervous, and I was experiencing the anxiety that a trip to Cleveland Clinic usually brings.  I was trying like heck to hold it together.  Sensing that I was near a meltdown, my Mom went into her pep talk, pick my spirits up, cheerleader mode. 


Written by Katie. Posted in Challenges, Favorites

September was the month I would be starting my 6th year of teaching.  August was the month Brad and I were supposed to start trying to have a family.  July was the month we were supposed to go to Gun Lake with friends.  June was the month I would get to see my favorite band, Dave Mathews Band in concert.  None of these things happened.

If the last year has taught me anything, it has taught me that life throws curve balls that are often beyond my control.  This has been a very hard lesson for me to learn; one that is extremely hard to accept for a type A, control freak like myself.  I have also learned that putting timelines on life doesn’t always work out as well.

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