Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Five For Friday 1/20/12

Written by Katie. Posted in Five For Friday

1.  Medical Stuff:

  • 3 Days of Home Rehab.  (I type this every Friday because it holds me accountable each week).
  • I had an OMM (Osteopathic Manipulative Medicine) appointment on Thursday.  I love my doctor’s approach: gentle, yet very effective.  She worked inside of my mouth this time to try to get my jaw muscles to calm down.  The only problem at my appointment was that my blood pressure was even lower this time. Not sure how much I should be concerned about this.
  • After a brief hiatus, it’s back to physical therapy for this zebra on February 2nd.
  • Next week is a big travel week for me: Dr. Grubb and Bev Monday for POTS (Toledo) and Dr. Lavallee on Thursday for EDS (South Bend).  Praying for good weather.

Five For Friday +1 1/13/12

Written by Katie. Posted in Five For Friday

1.  Medical Stuff:

  • I had my monthly Larry appointment.  He did a lot of gentle manipulations; mostly on my neck.  The OA release he does is like magic.
  • I had my annual asthma check-up with Dr. Rawsthorne.  Everything checked out well.  My breathing tests looked great.  The plan?  Continue with Advair, Singulair, my rescue inhaler, and my nebulizer machine for emergencies.
  • 3 Days of Home Rehab.
  • My blood pressure has been a major roller coaster lately.  One minute it is normal, the next minute it is super low, the next minute, the machine can’t find it…I guess that’s Dysautonomia for you.  I am starting to get good at recognizing when I have fluctuations.  When it drops, I get really tired and have a hard time thinking and forming words.  This issue is on my list to discuss with Bev when I see her and Dr. Grubb at the end of January.

Five For Friday 1/6/12

Written by Katie. Posted in Five For Friday

1.  Medical Stuff:

  • 3 Days of Home Rehab.
  • I had my 6 month cleaning at the dentist.  I received a better report with the flossing.
  • I had my second treatment with my cranio-sacral therapist.  I am finding that these appointments are ones that I am actually looking forward to.  Gotta love relief.

Five For Friday…4 days Late

Written by Katie. Posted in Five For Friday

Time got away from me!  I know excuses, excuses.  Everyone has one.

1.  Medical Stuff:

  • 1 Day of PT
  • 2 Days of Home Rehab.
  • I had my GI follow-up at U of M.  The plan is to continue doing what I’m doing since I am managing things fairly well with Domperidone, eating small meals, and eating a lot less bread-like things.
  • I had my first appointment with my new cranio-sacral therapy doc.  She was A.MAZ.ING.  My ribs felt better when I left, and let’s just say she is very, very interested in my health.  She was going home to study more about EDS.  I think this may be the start of a beautiful thing.  I see her again in two weeks.