Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Five For Friday 3/18/11

Written by Katie. Posted in Five For Friday

 

1.  Medical Stuff:
  • 2 Days of PT-Did regular circuit strengthening.  My PT also put new foot lifts in my shoes to give me better support. 
  • 2 Days of Home Rehab.
  • I got into Dr. Grubb’s Nurse Practitioner!  I had sent my info into their office in December and they called me Tuesday to schedule an appointment.  My appointment is in Toledo on April 20th, to get another expert’s opinion on POTS and my treatment.  It takes a year or more to get into Dr. Grubb himself so I jumped at the chance to see the NP since I was told they work very closely together.  I was also told to expect at least 2 hours for my appointment because she will go over EVERYTHING.  At a couple of my EDS appointments in the past year, I was told that Dr. Grubb probably has the best understanding about how POTS plays into EDS so that is promising to me.
  • My ribs hurt!  It’s been pretty frustrating.  I go back Monday to get my third round of prolotherapy (I cannot believe it’s already been 3 weeks!) so I will definitely be bringing up my ribs because they are worrying me!
  • I had to go to Sparrow Medical Supply to get a new pair of compression stockings since one of my stockings ripped in half when I was taking it off.  ?Oops.
RIP my first pair of compression stockings.  You were good to me.

Five for Friday 3/11/11

Written by Katie. Posted in Five For Friday

1.  Medical Stuff:

  • Saw Dr. Rosen which was extremely needed.
  • Saw Larry.  He did some gentle neck manipulations, put my lower ribs back in place, and acted as another therapist as we continued to talk about goals.  He gave me Apollo 13 homework due at my next appointment.   Basically I have to relate my disorders and struggles to the movie and present it on a poster board.  He must know I’m a teacher!  Now I must find a copy of the movie.
  • 2 days of PT.  Started a small amount of treadmill work.  I realized very quickly that sideways walking on a treadmill is VERY different than forward walking.
  • 2 days of home rehab.
  • Last day for the PT student who has become a good friend. 
  • Called Dr. Grubb’s office (for POTS) to check on my waiting list status.  They said they may be contacting me next week for an appointment with the NP next month.  Stay tuned…

Five for Friday 3/4/11

Written by Katie. Posted in Five For Friday

1.  Medical Stuff

  • Prolotherapy round two was on Monday.
  • 1 day of PT
  • 1 day of Home Rehab
  • POTS has been giving me fits since Wednesday.  My heart rate hasn’t been this up and down for a while.  Had a minor meltdown about it after feeling dizzy and feeling a lot of body heaviness and weakness.  My therapists pointed out that the trauma from the shots could have made my autonomic nervous system go haywire.  Also, it could be due to my cycle and/or not doing therapy for a full week (could 7 days cause enough deconditioning to give me worse POTS symptoms?)  Maybe it’s a combo of all 3? I definitely recorded this in my daily log.

Five for Friday…a little late 2/27/11

Written by Katie. Posted in Five For Friday

I’ve been soaking up every bit of family time since we had Andy’s Army going away party on Friday. Since I have been low on sleep with all of the excitement, my down time has been spent resting, recovering, and replenishing my spoons…Needless to say blogging has gone by the wayside this weekend, but I should be able to get back on track since prolotherapy round 2 is tomorrow and I will be laying low for the next few days.

1.  Medical Stuff:
  • 2 days of PT.
  • The PT student did her In-service on EDS and I went to answer questions and educate the therapists from a patient’s perspective.  I will definitely be blogging more about this.
  • 2 days of Home Rehab.

Five For Friday 2/18/11

Written by Katie. Posted in Five For Friday

1.  Medical Stuff:

  • 3 sessions of PT-2 strengthening and 1 soft tissue
  • 2 days of home rehab
  • Used my topical pain cream for the first time.  It did help take some of my back and neck pain away.  I love that it’s not another pill I have to take.
  • Had the Rest and Recovery Talk.
  • Had an hour session with Dr. Rosen.  He definitely helps me get my head on straight.

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