Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Five For Friday 1/14/11

Written by Katie. Posted in Five For Friday

1.  Medical Stuff:

  • 3 days of PT
  • Great session with Dr. Rosen
  • Got measured for new compression stockings (Juzo, not Jobst this time). 
  • The high risk pregnancy doc’s office called.  I have an appointment January 27th. (For the record, in case you have not read previous posts, I am NOT pregnant).
  • Got my testosterone levels back to take to the prolotherapy doc on Tuesday.  My levels were super low.  Hmmm, wonder what that could mean.
  • Tried two new tape jobs for neck/rib/shoulder stabilization.

Exhibit A:

Exhibit B:

Five For Friday 1/7/11

Written by Katie. Posted in Five For Friday

Most of my week was medical stuff, so this one could be a tad bit boring…

1.  Medical Stuff: 

Physical therapy Tuesday and Thursday-Recumbent bike; arms only, unweighting arm work, back stabilization on half foam roller, whole body gym for legs with pelvic stabilization ball…We are trying to do the exercises in an interval fashion…2 mins of exercises, 1 min of laying down rest, 2 mins of exercises, 1 min of laying down rest….We are also trying to do exercises with high reps, and very low weight to “create energy in the tissues…”

Saw the pulmonologist for my annual asthma appointment.  Breathing looked good.  My doctor looked up EDS and did not feel it should have any effect on my breathing.  That’s a positive!

Mailed my records and my summary to Dr. Lavallee. 

Had blood work for my upcoming appointment about prolotherapy to check my free testosterone and total testosterone. 

Saw Larry and he did some cranial work. 

Went to the gynecologist to talk about birth control and family planning options. 

I weighed in at 120 pounds at the gyno and the asthma doctor; which is a much healthier weight for me than the 112 pounds I weighed in at this summer.  This is a picture from the summer when I weighed 112.  I think I look pretty gross. 

Funny how you try and lose weight all your life and then one day you find yourself trying to gain weight.  Life is crazy.

Five For Friday 12/24/10

Written by Katie. Posted in Five For Friday

I’m going to keep this one short and sweet with longer Christmas posts to come!

1.  I’m cheating and putting the medical posts into one:  Went to Fort Wayne and had facet injections into C6/C7 in my neck. Started physical therapy again.  My first session was focused on the soft tissue in my neck and back (aka a massage).  The plan for physical therapy is toning work with soft tissue work.  Made an appointment with my OB-GYN to talk about starting a new birth control to hopefully help the EDS by making me less stretchy during my time of the month.

Five For Friday 12/18/10

Written by Katie. Posted in Five For Friday

Forgive me, I’m a day late.  Had a yuck day yesterday-all hurricanes going at once; POTS, neck, Migraine, GI…Was on the massage pillow and heating pad most of the day and in bed at 8:30…Hopefully today will be a better day.


1.   Larry had me meet with a doctor from Minnesota who was in town for the weekend teaching at the MSU College of Osteopathic Medicine, Principles of Manual Medicine Course.  He spent an hour Sunday and an hour Monday doing visceral manipulations on me.  AND, his wife and daughter both have EDS! Visceral Manipulation is a type of gentle manipulation that helps relieve imbalances and restrictions in the interconnections between the motions of all the organs and structures of the body. (I took that from http://www.jeffreyburch.com/home/jb1/visceral_main.html).

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