Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

We Have Launched!

Written by Katie. Posted in Foundation, Fundraisers, Invisible Illness, Music

Dear Family, Friends, Supporters, and Fellow Zebras,

Finally!

After months, and days, and hours, and hours…and more hours of planning, we are finally ready to launch ticket sales for our 3rd Annual, “An Evening with Chris Trapper and Tony Lucca to Benefit Invisible Illness Awareness and Research.”

There have been many meetings so far.  So many triumphs.  So many acts of kindness and generosity.  So many emails.  And yes, even a few frustrations and tears along the way.  I have learned that just goes with the territory.

Two years ago, the dream was born for Allie and me. 

30 Things: Invisible Illness Week 2013

Written by Katie. Posted in About Me, Chronic Illness, Ehlers-Danlos Awareness, Invisible Illness, POTS Awareness, Questions

Hi friends! Invisible Illness Week is fast approaching (September 9-15). I was asked to fill this out, and just before I was about to respond with, “I already did it two years ago,” I thought about it and realized a lot has changed in two years.  Therefore, some of my answers are different and some have remained the same.  I wanted to post it early, before school starts, since I am unsure how my body will respond or adjust to being back to work again.  So here you go. My 30 things.

EDS Tweets

Twitter response: "Invalid or expired token."

POTS Tweets

Twitter response: "Invalid or expired token."