Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Benefit Concert Speeches: 2013

Written by Katie. Posted in Chronic Illness, Ehlers-Danlos Awareness, Family, Favorites, Fundraisers, Invisible Illness, Memorable Experiences, POTS Awareness, Writing

For documentation sake, the following are Allie and my speeches from the Life as a Zebra Foundation’s second annual, “An Evening With Chris Trapper and opener, Joshua Davis Trio, to Benefit Invisible Illness Research” held at the Kellogg Hotel and Conference Center on April 13, 2013.

The 2nd Annual Invisible Illness Benefit Concert Launch Day!

Written by Katie. Posted in Ehlers-Danlos Awareness, Family, Fundraisers, Invisible Illness, Memorable Experiences, Music, POTS Awareness, Thankful

Dear friends, family, supporters, and fellow zebras,

Finally.

After months, and days, and hours, and hours…and more hours of planning, we are finally ready to launch ticket sales for our 2nd Annual, “An Evening with Chris Trapper to Benefit Invisible Illness Research.”

What is Normal Anyways? #NHBPM Carnival

Written by Katie. Posted in Ehlers-Danlos Awareness, Invisible Illness, POTS Awareness

I have decided to join the National Health Blog Post Month Carnival.  I just may be crazy with the way I have been feeling and with everything that is jam-packed on my November calendar, but I am going to do the best I can.  The challenge is to post everyday for the month of November, using the daily health prompts provided by WEGO Health. 

EDS Tweets

Twitter response: "Invalid or expired token."

POTS Tweets

Twitter response: "Invalid or expired token."