Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

My Say

Written by Katie. Posted in About Me, Challenges, Favorites, Memorable Experiences

I feel like there is a time and a place to tell certain parts of your “life story.”   Sometimes, the time just does not seem right.  I have realized that this is okay, and often, the time will present itself when it is right and meaningful.  That is what happened to me this week.

When I was 17, something happened to me that changed my life forever.  I have always wanted to keep this part of my story

My Top 20 for Planning an Event

Written by Katie. Posted in Fundraisers, Memorable Experiences

So needless to say, I learned a LOT from planning “An Evening With Chris Trapper To Benefit Invisible Illnesses.” These “lessons” will definitely come in handy as we begin planning the second annual.

Here’s my Top 20:

1. Get a venue secured first, and put it in writing that it is secured. Otherwise you will be scrambling, panicking, and using up all your cell phone minutes trying to find a new venue, because the other one fell through. (Thank you Lou and Harry’s!)

EDS Tweets

Twitter response: "Invalid or expired token."

POTS Tweets

Twitter response: "Invalid or expired token."