Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

The 2nd Annual Invisible Illness Benefit Concert Launch Day!

Written by Katie. Posted in Ehlers-Danlos Awareness, Family, Fundraisers, Invisible Illness, Memorable Experiences, Music, POTS Awareness, Thankful

Dear friends, family, supporters, and fellow zebras,

Finally.

After months, and days, and hours, and hours…and more hours of planning, we are finally ready to launch ticket sales for our 2nd Annual, “An Evening with Chris Trapper to Benefit Invisible Illness Research.”

Heat and Tunes

Written by Katie. Posted in Music

The heat can break any time now.  I have been experiencing a whole new level of fatigue lately and I am convinced that it is because of this ungodly heat.  It’s really weird because even when I am in the air conditioning, it feels like my body still knows that the heat index is 105 degrees. 

Just something else I am learning.  Extreme heat + POTS = Bad combo for me. 

So glad to see relief is in sight by Monday. 

Since I have been spending a lot of time in the AC, I have been trying to work on a few pretty exciting projects, as well as immersing myself in music.  Here’s a few of my favorite tunes right now…

Walk On

Written by Katie. Posted in Favorites, Memorable Experiences, Music

Music.  Relationships. 

Relationships.  Music

These are the two things that have gotten me through this past year without going crazy.  These are the two things that I lean on heavily everyday for my survival.  For my sanity.  For my motivation and inspiration.  For my Faith.

I could write for hours and hours about both of these topics, and as I continue to blog, I know that they will keep surfacing as major players in my life.  U2 is something I have been meaning to write about since I saw them in concert at Spartan Stadium a little over a week ago.  It is funny because the first 27 years of my life, I liked U2.  They made up a chunk of my running playlist.  I would watch some of their concerts on Palladia.  I knew and admired that Bono was really involved with various charities. 

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