Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Q & A: My Current Exercise Regimen

Written by Katie. Posted in About Me, Ehlers-Danlos Awareness, Physical Therapy, POTS Awareness, Questions

I recently received an email from a Mom whose daughter has just been diagnosed with EDS and POTS.  She had questions about my exercise routine with POTS and EDS.  It made me think about how I have really neglected this blog the last few months.  I am honestly having trouble finding the time and the energy to keep everything updated, but I am going to try and do better.  I feel it’s important; especially for awareness and documentation sake.  When I think back to why I started this blog in the first place, one of the reasons was to document my journey for learning to live with EDS and POTS.  When I was really sick, I remember looking all over the Internet for blogs that did the same. I found such comfort in reading about other people’s stories that were so similar to mine. 

My Week in Chapters

Written by Katie. Posted in Challenges, Physical Therapy, Teaching

Chapter 1: School

I told Zondra the other day (the afternoon teacher in our classroom) that I finally felt like the kids and I were getting into a rhythm.  She agreed that she felt the same way in the afternoons.

The procedures are established, the kids have adjusted, I have adjusted, and we are finally into the “meat” of things.  Sounds, letters, numbers, the 5 senses, pumpkins, art projects, storytelling, and the list goes on…

EDS Tweets

Twitter response: "Invalid or expired token."

POTS Tweets

Twitter response: "Invalid or expired token."