I recently received an email from a Mom whose daughter has just been diagnosed with EDS and POTS. She had questions about my exercise routine with POTS and EDS. It made me think about how I have really neglected this blog the last few months. I am honestly having trouble finding the time and the energy to keep everything updated, but I am going to try and do better. I feel it’s important; especially for awareness and documentation sake. When I think back to why I started this blog in the first place, one of the reasons was to document my journey for learning to live with EDS and POTS. When I was really sick, I remember looking all over the Internet for blogs that did the same. I found such comfort in reading about other people’s stories that were so similar to mine.
Umm, so about that post everyday thing during the month of November…I fell off the wagon. I’m going to try and pick up where I left off…
As I think about the post I just published, something is bothering me. I feel like I need to back up a bit, because I feel like I made “exercising” with POTS and EDS sound like such a simple thing to do. And if you have POTS and/or EDS, you know that it is definitely NOT easy.
Chapter 1: School
I told Zondra the other day (the afternoon teacher in our classroom) that I finally felt like the kids and I were getting into a rhythm. She agreed that she felt the same way in the afternoons.
The procedures are established, the kids have adjusted, I have adjusted, and we are finally into the “meat” of things. Sounds, letters, numbers, the 5 senses, pumpkins, art projects, storytelling, and the list goes on…
For the sake of documenting…
6:25: Drag myself out of bed, shower, coffee, get ready. Bad day-Blow dry hair only. Good day-Blow dry and curl hair.
7:30: (On a good day) Hurry out the door.
7:50: Get to school and prepare the classroom.