Dr. Rosen asked me at my last appointment if I wished I was never diagnosed with EDS. I was already emotional and actually got kind of angry at his question. Without any hesitation, I snapped back that of course I wish I didn’t have EDS.
After I left my appointment that day, it was as if Dr. Rosen’s question was haunting me. I could not get it off of my mind. I realized as I thought more and more about it that the answer to that question is not as black and white as I thought it was at the time. I took that question with me to therapy. I took it with me to Georgia. I sent my Aunt Mada a Facebook message about it to see what her perspective was since she lives a full and active life with MS. And then I thought about it some more.