Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Prolotherapy Through My Eyes

Written by Katie. Posted in Ehlers-Danlos Appointments, Ehlers-Danlos Awareness, Medical Team, Prolotherapy

I started prolotherapy treatments in 2011.  I have lost count as to how many I’ve had. I have learned along the way that prolotherapy is controversial in the world of EDS. The first EDS doctor I saw after I was diagnosed actually did not recommend it, although he admitted he did not know much about it. At that time, I was having a horrible time keeping my back and head supported without a neck or back brace. That doctor actually diagnosed me with cranial instability and sent me on my way with a referral to a spine surgeon, telling me he suspected the surgeon would determine that I needed a skull to C-3 fusion.

“I can bear any pain as long as it has meaning.” ~Murakami

Written by Katie. Posted in Ehlers-Danlos Appointments, Prolotherapy

I had prolotherapy again on Wednesday.  This was intentional scheduling on my part.  I knew when I finished gymnastics camp, I would be one hurting zebra, so I figured having shots right after camp ended would be a good way to tune everything up, and help relieve some of the pain.

It was a very early morning complete with a few choice words when the alarm went off. 

EDS Tweets

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POTS Tweets

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