Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

25 Things

Written by Katie. Posted in About Me, Lists, Questions

One of my friends emailed me a couple of weeks ago asking what would be my top 25 things that make me smile. Since she asked, I have found myself thinking about it quite often. I am here to say, it is not a bad thing to have to think about the things that make you happy; especially during some difficult, busy, flare-up weeks.

(Thank you, friend. You know who you are).

1. Hugs. Not weak hugs, but those really great, meaningful hugs.

2. Breakfast for dinner.

3. Music. All kinds. Especially live music.

30 Things: Invisible Illness Week 2013

Written by Katie. Posted in About Me, Chronic Illness, Ehlers-Danlos Awareness, Invisible Illness, POTS Awareness, Questions

Hi friends! Invisible Illness Week is fast approaching (September 9-15). I was asked to fill this out, and just before I was about to respond with, “I already did it two years ago,” I thought about it and realized a lot has changed in two years.  Therefore, some of my answers are different and some have remained the same.  I wanted to post it early, before school starts, since I am unsure how my body will respond or adjust to being back to work again.  So here you go. My 30 things.

Right Now…

Written by Katie. Posted in About Me, Questions, Random

1) Reading: Emails! Other blogs, just started the book, Lean In.

2) Top three songs: Hmm, So many right now: “Just Like Heaven” (On a Cure Kick…Allie told me this made me old), “Blurred Lines” (Can’t help it. Makes my booty shake…does saying “booty” also make me old?), & “These are the Days” since I broke down and cried when I heard it driving home from school this week. It was such a fitting song to end the year.

Q & A: My Current Exercise Regimen

Written by Katie. Posted in About Me, Ehlers-Danlos Awareness, Physical Therapy, POTS Awareness, Questions

I recently received an email from a Mom whose daughter has just been diagnosed with EDS and POTS.  She had questions about my exercise routine with POTS and EDS.  It made me think about how I have really neglected this blog the last few months.  I am honestly having trouble finding the time and the energy to keep everything updated, but I am going to try and do better.  I feel it’s important; especially for awareness and documentation sake.  When I think back to why I started this blog in the first place, one of the reasons was to document my journey for learning to live with EDS and POTS.  When I was really sick, I remember looking all over the Internet for blogs that did the same. I found such comfort in reading about other people’s stories that were so similar to mine. 

EDS Tweets

Twitter response: "Invalid or expired token."

POTS Tweets

Twitter response: "Invalid or expired token."