I recently received an email from a Mom whose daughter has just been diagnosed with EDS and POTS.  She had questions about my exercise routine with POTS and EDS.  It made me think about how I have really neglected this blog the last few months.  I am honestly having trouble finding the time and the energy to keep everything updated, but I am going to try and do better.  I feel it’s important; especially for awareness and documentation sake.  When I think back to why I started this blog in the first place, one of the reasons was to document my journey for learning to live with EDS and POTS.  When I was really sick, I remember looking all over the Internet for blogs that did the same. I found such comfort in reading about other people’s stories that were so similar to mine. 

Goodbye February, Hello March!

1) What I was reading: Emails! Other blogs, teacher stuff, CNN, texts, and more emails.

2) Top three songs I was drawn to: Try, Optimistic Thought, Lonesome

Ehlers-Danlos Syndrome is genetic.  Of the genes. Often inherited (though not always). This, I get.

What I have always wondered is if my EDS was in fact inherited, where in my family did I get it from?

My siblings don’t have it.  My parents don’t have it.  For three years, I have not known of anyone on either side of my family who has EDS.

It’s tradition!  Here are our annual reflections…

Did you keep your new year’s resolutions, and will you make more for next year?

Brad-My 2013 resolution continues to be to exercise consistently, even when life gets busy.

Katie- I like to make goals to work towards instead of resolutions.  I accomplished over half of the goals I set in 2012.  I made 50 more goals for 2013.  I carried some over from 2012.

Topic: What questions do you have for other patients?

One of the most important things for me is sharing with fellow zebras.  There is nothing like being able to talk to someone who is living a life similar to mine.  I’m sure many of you will understand what I mean when I say what an amazing feeling it is to meet someone who just “knows” what you are going through, because they are living it too.