Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Fate, Family, Answers, & Genes

Written by Katie. Posted in Ehlers-Danlos Awareness, Family, Memorable Experiences, Questions

Ehlers-Danlos Syndrome is genetic.  Of the genes. Often inherited (though not always). This, I get.

What I have always wondered is if my EDS was in fact inherited, where in my family did I get it from?

My siblings don’t have it.  My parents don’t have it.  For three years, I have not known of anyone on either side of my family who has EDS.

Our 2012 Rehash

Written by Katie. Posted in About Me, Questions

It’s tradition!  Here are our annual reflections…

Did you keep your new year’s resolutions, and will you make more for next year?

Brad-My 2013 resolution continues to be to exercise consistently, even when life gets busy.

Katie- I like to make goals to work towards instead of resolutions.  I accomplished over half of the goals I set in 2012.  I made 50 more goals for 2013.  I carried some over from 2012.

Zebra Questions #NHBPM Carnival

Written by Katie. Posted in About Me, Chronic Illness, Lists, Questions

Topic: What questions do you have for other patients?

One of the most important things for me is sharing with fellow zebras.  There is nothing like being able to talk to someone who is living a life similar to mine.  I’m sure many of you will understand what I mean when I say what an amazing feeling it is to meet someone who just “knows” what you are going through, because they are living it too. 

EDS Tweets

Twitter response: "Invalid or expired token."

POTS Tweets

Twitter response: "Invalid or expired token."