Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Contact Me

This Zebra doesn\’t bite!

I would love to hear from you!  You can contact me at…

katie@lifeasazebra.com

~or~

 you can leave a comment or question on the blog, and I will get back to you!

Zebra Love,

Katie

Comments (5)

  • soleil

    |

    Hi there! Wondering who your EDS specialist is?

    Reply

    • AnnaMarie Vandewalle

      |

      Hello! I was wondering what you do to help with your gastroparesis issues? I have been diagnosed with EDS, and you are truly an inspiration.

      Reply

      • Katie

        |

        Hi there! Thank you for your kind words. For GP, I see a motility specialist at U of M. I take Domperidone when I have flares. I have to get it from Canada. I am working on decreasing carbs. Eating smaller amounts is also helpful, and when my GP is really bad, I try to stick to smoothies with protein until things calm down. I have actually found in the last couple of months that Shakeology is good for my gut and helps keep things moving. I love it!

        Reply

  • Rachel Miller

    |

    Hi I’m Rachel. I have had POTS for 10 years but was just recently diagnosed with EDS. I have been very encouraged by your blog. When did you decide to start using your wheelchair? I have been progressively having more issues with pain and subluxations when walking but I don’t think I am “bad enough” for a wheelchair quite yet. How did you decide that was the best way to take care of you? I read your posts about your trip to Disney and a lot of your planning and decisions made sense to me. I just am not sure how to convince myself that those changes would help me and not be me “giving in” to EDS.

    Reply

  • Bill

    |

    I just came across you interview with Deb Hart and it hit home as I have Gpa/mpa
    Formerly know as wegners granulomatosis (vasculitis )

    We need to get awareness out and your doing that about autoimmune illnesses through your website

    Thanks Katie

    Sincerely William Spakes

    Reply

Leave a comment

EDS Tweets

Twitter response: "Invalid or expired token."

POTS Tweets

Twitter response: "Invalid or expired token."