Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Contact Me

This Zebra doesn\’t bite!

I would love to hear from you!  You can contact me at…



 you can leave a comment or question on the blog, and I will get back to you!

Zebra Love,


Comments (3)

  • soleil


    Hi there! Wondering who your EDS specialist is?


  • Rachel Miller


    Hi I’m Rachel. I have had POTS for 10 years but was just recently diagnosed with EDS. I have been very encouraged by your blog. When did you decide to start using your wheelchair? I have been progressively having more issues with pain and subluxations when walking but I don’t think I am “bad enough” for a wheelchair quite yet. How did you decide that was the best way to take care of you? I read your posts about your trip to Disney and a lot of your planning and decisions made sense to me. I just am not sure how to convince myself that those changes would help me and not be me “giving in” to EDS.


  • Bill


    I just came across you interview with Deb Hart and it hit home as I have Gpa/mpa
    Formerly know as wegners granulomatosis (vasculitis )

    We need to get awareness out and your doing that about autoimmune illnesses through your website

    Thanks Katie

    Sincerely William Spakes


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