Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Echo Update

Written by Katie. Posted in Ehlers-Danlos Awareness, Medical Team, POTS Appointments

I just realized that I never updated about my echo results.  After a week and a half of waiting, the report was finally located.  I was told that I have mild regurgitation in two of the valves, but that everything else looked good.  The nurse who called with the results let me know that Bev thought it was an overall “okay report,” and while I did not need to be concerned, it is very important that I get an annual echo to monitor if there are any changes.

With that being said, I just wanted to encourage all of the other EDS’rs out there to talk to their doctors about having regular echos done, if possible; mainly because of the increased risk of Mitral Valve Prolapse. I admit I was extremely lax about getting this one done, until I found out that my report was not 100% normal.

From now on, I will have it on my calendar that I need one every August {highlighted because I am anal like that}.

This was a great reminder that it will always be my responsibility to know everything I can about my body; especially when EDS can affect all aspects of it…joints, Autonomic Nervous System, GI tract, vascular system, skin, and heart just to name a few…

Knowledge is power.

Off my soapbox now.

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Comments (1)

  • Tonya

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    Keep an eye on it. At my last dr’s appointment they said I was scheduled for my yearly echo next visit, so I’ll be having one too.

    I hear ya on the waiting thing, that week and a half must’ve been brutal. Right now, I’m waiting for my appointment with a new dr for my stomach, I have 26 days & I hate it.

    Reply

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