Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Five For Friday 10/9/15

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 Day of “kinda” PT. I was feeling sick so after my PT worked on me, she sent me home without me doing my exercises.
  • That same night, I ended up in urgent care. They kept me until they were sure I did not have pneumonia. I ended up getting to go home with a prescription to treat bronchitis and a sinus infection.
  • 1 Day of Home Rehab. I pushed hard when I feeling better since I missed my normal PT work due to being sick.

2. I missed two whole days of school. That was hard for me, but necessary. In my 33 years, I don’t think I’ve ever slept so much in 48 hours…

3. Last Saturday, Brad and I headed to Grand Rapids with family and friends to see the Avett Brothers. Love, love, love them…I think it was my 5th show, and despite being cold and wet, it was worth it. You can see my “stealing the chair” story on our FB page…I’m sure POTS peeps will appreciate it.

4. Dysautonomia Awareness Month fact: 25% of people with Dysautonomia are unable to work and are wheelchair bound. 100% have daily struggles and need management help.

5. Big news! I received an email this week letting our foundation know that Dr Blair Grubb was awarded the Medical Professional of the Decade Award. Life as a Zebra Foundation has been supporting Dr. Grubb’s research and we could not be happier for him! Currently he is in Birmingham, England for the Annual Meeting of the Arrhythmia Alliance and British Heart Rhythm Society. These are the largest organizations in the United Kingdom to deal with Heart Rhythm and Autonomic Disorders. Such a well deserved honor!

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