Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Five For Friday +1 1/13/12

Written by Katie. Posted in Five For Friday

1.  Medical Stuff:

  • I had my monthly Larry appointment.  He did a lot of gentle manipulations; mostly on my neck.  The OA release he does is like magic.
  • I had my annual asthma check-up with Dr. Rawsthorne.  Everything checked out well.  My breathing tests looked great.  The plan?  Continue with Advair, Singulair, my rescue inhaler, and my nebulizer machine for emergencies.
  • 3 Days of Home Rehab.
  • My blood pressure has been a major roller coaster lately.  One minute it is normal, the next minute it is super low, the next minute, the machine can’t find it…I guess that’s Dysautonomia for you.  I am starting to get good at recognizing when I have fluctuations.  When it drops, I get really tired and have a hard time thinking and forming words.  This issue is on my list to discuss with Bev when I see her and Dr. Grubb at the end of January.

2.  One of my besties, Theresa, surprised me with this on Monday:

"When the world says, 'Give up,' Hope whispers, 'Try it one more time.'"

I am now on a mission to find a frame.  It’s going in our den.  Thanks Theresa, for the beautiful surprise.

 

3.  This is the ornament Brad got me for Christmas this year:

It's a "Wishing Star." I could not bring myself to pack it away with our Christmas stuff. I will be leaving it out all year.

 

4.  Three “R’s” are the name of the game this weekend:  Rest, Recovery, and Report Cards.  Thank God for a 3 day weekend.

5.  So, I got 7 pairs of shoes on Sunday at Younkers.  I thought Brad’s eyes were going to burst out of his head when he saw the boxes.  BUT, the deals were unbelievable (like 70-80% off), I finally have dress shoes that are kind to my body, and my Mama convinced me that it was worth it since I am not one that is known to buy shoes.  While I love clothes shopping, I actually hate shoe shopping .  I avoid it at all costs.  My sisters and Mom have been begging me to throw away certain shoes that are literally falling apart.  Up until Sunday, I had ignored their requests since I had grown attached to these certain “ugly” shoes.  Anyways, when I found so many pairs that were good for my body, cheap, came in different colors, cheap, were in my size, cheap, stylish, and cheap I could not resist.  I figure I’m good for another 4 years.

+1:  I had an epiphany this week that I had to share…The things I can do will always outnumber the things I cannot do.  That is a comforting thought, my friends.

 

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Comments (1)

  • Steph

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    My BP has been completely nuts also! Weather change, maybe? The barometric pressure sometimes messes with my BP. Let me know if Bev gives you any good advice… I don’t see her until the end of February. :-/

    Reply

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