Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Five For Friday 1/15/16

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 Day of PT. Circuit training and more circuit training. For the record, one minute of running in place with a thera-band around my ankles feels like 30. Ooof.
  • 2 Days of Home Rehab. Treadmill, floor, and core strengthening.
  • I saw Larry on Monday for cranial-sacral therapy, acupuncture, and cervical OMM.

2. In the classroom this week, we spent a good chunk of time discussing Dr. Martin Luther King, civil rights, segregation, equality, and how to stand up for what is right with PEACE. If you think these concepts are too advanced for kindergarten, think again. It is these kindergarteners, and what they have to say about these concepts that gives me major faith in humanity.

3. Raffle license done! Talent secured! Emcee secured! Meeting with the conference center done! Silent auction and sponsorship packets made! Whew. April 16, 2016 is really happening. Save the date! Our 5th annual benefit concert at Kellogg Center!

4. Speaking of our benefit, we have partnered with the University of Toledo again to fund Dr. Grubb’s research on Dysautonomia. We wanted to have a bigger impact on the research by funding it for more than just one year. We are stoked to work with Dr. Grubb and the University again, and have set a goal! Last year, we presented Dr. Grubb with a $10,000 research grant. This year, we are hoping to increase that by $5,000 for a total of $15,000. Will you consider helping us?!

5. This week was a tough week. I’m not gonna lie. However, on Thursday, I walked to my mailbox, and there waiting for me was the book I have been anxiously awaiting to come out, written by one of the people I look up to the most is this world. It had a beautiful note written inside of the book. The book is Lessons for Living from an Italian Grandmother: The Courage to Conquer Pain, written by Lisa Gigliotti. It turned my week around in a second. If you haven’t checked out her books, I highly encourage you to do so.

Thank you, Lisa ~ xo

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