Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Five For Friday 4/11/14

Written by Katie. Posted in Five For Friday

2 weeks behind! Life got super crazy and I am now finally catching my breath and feeling human again…

1. Medical Stuff:

  • 1 Day of PT. I needed a lot of cranial work.
  • 1 Day of Home Rehab.
  • VERY little sleep. At times, it was a big struggle with tears, and yucky-ness, but I made it through.

2. We were on spring break all week so I dove into major last-minute benefit meetings, and planning. I’m not gonna lie. I felt like a very tired, hamster on a wheel, going a million miles a minute, but it was so worth it in the end…Definitely more to come on that later…: )

3. Media and promotions were a big part of my spring break. I felt very thankful to have the time and the radio and TV opportunities to get the word out about invisible illness awareness and the event.

Evan Katie News6

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4. We received such an incredible surprise from our friends, Vince and Mary Jane when they came to our house to help assemble silent auction baskets. Life as a Zebra has officially adopted Zoe, a zebra at the Detroit Zoo! We are so thankful for this special gift, which will assist in the mission of celebrating and saving wildlife. We can’t wait to meet our Zoe Baby!

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5. How cool is this! From Dysautonomia International: Parents of young children with POTS will enjoy this online book written by an adorable 6 year old girl. Pearl was returning to 1st grade after missing quite a bit of school due to her POTS symptoms and wanted her classmates to know what was wrong, but she didn’t want them to be afraid, so she wrote this great story book with her mom.”

Check it out here! http://www.dysautonomiainternational.org/pdf/PearlOurGirlBook.pdf

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