Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Five For Friday 4/15/11

Written by Katie. Posted in Five For Friday

After a big week last week of Bob Seger and Philly, I knew I had to lay pretty low this week…Sunday and Monday I was a mess, but by Tuesday I was feeling a lot more human.  Hopefully these five won’t bore you to tears…Especially since I have only a couple of pictures.  Everything on my computer was wiped out yesterday.  I still don’t know why.  Sighhhhhhhhhhhhhhh…

1.  Medical Stuff: 

  • 2 days of PT.  Circuit work and elliptical work.  I tried to do the recumbent bike yesterday but I was “taching” too much (heart rate too high) so I had to stop.  At least I got in a good amount of strengthening before the POTS attack hit.
  • 2 days of home rehab.
  • I had my monthly appointment with Larry.  I turned in my Apollo 13 assignment, we talked about where I am at with my goals/progress, what to discuss with Dr. Cantieri on Monday and Dr. Grubb’s NP on Wednesday, and we figured out a plan for my continuing physical therapy.
  • After going over my sources of pain, we realized that EDS is affecting my jaw.  It keeps popping and subluxing, giving me some of my neck and jaw pain.  I am to wear my mouth guard more, and watch it.  If it gets too bad, I can be referred to a doctor who only works on TMJ problems.  I have also heard you can have prolotherapy on your jaw.  Hmmm… 
  • Larry wrote me a prescription for a new pain med cream I had to have made at the compound pharmacy to help with spasms; especially in my neck (since I HATE taking muscle relaxers).  He also wrote me a prescription for open toe compression stockings!
  • The good news about open toe stockings?  They are open toe.  The bad news about open toe stockings?  They only come in opaque, not sheer like my other ones.  I guess beggars can’t be choosers, right?  I am still waiting for them to come in the mail.

2.  I took my Grandma’s painting to Michael’s.  They told me they do not do art restoration, only framing, and if I wanted to have it restored, I would probably have to ship it to a museum in Chicago or New York.  This did not sound right to me, so I went home and googled “art restoration in Michigan.”  I found ONE place~Frames Unlimited in East Lansing that said they restore art.  I took the painting there, and long story short, it is being shipped to a woman who works for the store who does their restorations.  I was told she will call me with a quote.  The man I talked to said to plan on around $100-$150 to have the background and my Grandma’s signature restored.  Whoa, that was more than I thought, but as I thought about it more and more I decided it was worth it. I am now waiting on the woman to call and give me her figure so I can (hopefully) give her the green light.

3.  Yesterday, one of my best buds, Theresa came for a visit.  We originally had plans to try and go for a walk, but since she came after therapy on my “tachy” day, we just sat and gabbed since I was pretty wiped out.  We had a great visit nevertheless. Time always flies when we have our girl talks.

4.  Tonight, Brad went to his school’s dance.  It was a tropical theme, so this is how he left the house…

I joined in on the fun too before he took off…Makes me feel “summery”

Thank goodness for our tub full of “parrothead wear” for Jimmy Buffett concerts. 

5.  A few more randoms for the week..

  • I found I love the show Extreme Couponing.  Guilty pleasure. 
  • I got another awesome letter from Andy. 
  •  I am getting anxious about the week ahead of me.  Prolotherapy in Indiana Monday and my Dr. Grubb appointment in Ohio on Wednesday.  The price of gas can come down anytime now… 
  • I was notified yesterday by Google as I was uploading my Philly pics, that I had run out of space, and if I wanted more space, I had to pay for it.  I had no idea this is how it works…Apparently you are given 1 GB for free but once that it is used up, you must pay for more GB’s.  I paid 5 bucks for 20 GB’s. I didn’t think that was bad at all. 
  • When Brad gets home from his dance tonight, it will be time for one of our absolute favorite shows. The Friday Night Lights season 5 premiere!  “Clear eyes, Full hearts, Can’t lose!”  We have been giddy about it all week long. 

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Comments (1)

  • Sara Gooley

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    >You & Brad are the cutest, dorkiest couple I know! Love you both!

    Reply

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