Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Five For Friday 5/2/14

Written by Katie. Posted in Five For Friday

May! Which means Vasculitis awareness month, Ehlers-Danlos awareness month, and so many more…

1. Medical Stuff:

  • 1 Day of PT. I did my strengthening and cardio work, and then we focused a lot on my thoracic junction and lower ribs. Every once in a while, this area flares up and it’s a matter of heat, Biofreeze, OMM, and just riding it out until it passes. Hopefully this will happen sooner than later!
  • On a more positive note, I had a glorious week of sleep. Knock on wood that this stretch continues…
  • 2 Days of Home Rehab. I had to modify my exercises a bit because of my thoracic pain, but I got both days in!

2. Thank you for all of the well wishes for my first Senate meeting about hopefully securing a proclamation for an “Invisible Illness Awareness Week” in Michigan. The meeting actually had to be rescheduled for this Tuesday, so hopefully all will go well!

3. On Sunday, my friend Angie and I headed out to support our friends at New World Flood, a non-profit organization with the mission, “to flood the world with service.” We attended their Battlefield Brawl which was an event to support kids with life threatening illnesses. It’s so cool to see what our community is doing to make a difference. Love, love, love it…

New World Flood 2

With Co-Founder of New World Flood, TJ Duckett.

 

New World Flood 1

Fellow Sexton Big Reds!

4. Sunday, I received a call that put a big smile on my face! John Geddert, one of Allie and my former gymnastics coaches called to see if Life as a Zebra wanted to partner with Geddert’s Twistars Gymnastics Club (and Dr. Larry Nassar’s Gymnastics Doctor Foundation) for their first ever, family fun event called Gympalooza!  It didn’t take long to say a big, “Yes!” This event is going to be HUGE and FREE with lots of cool activities (bounce house city, costume characters, stage with music, games, fire trucks, gymnastics lessons, soccer lessons and more…). The goal is to make this event, THE event of the year for kids and families! Mark your calendars! August 23rd! We are pumped!

You can get your free tickets and more info here!

5. This week I asked my students what were some special things they wanted to do before the end of the school year. One said, “Break Dance.” One said, “play with water balloons.” One said, “snuggle with Ms. Katie all morning.”

I LOVE kindergarten. That is all.

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Comments (1)

  • Beth

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    Fellow Zebra here :) My niece, Gabe Johnson who went to school with you in HS, mentioned you also have POTS. Looking into finding out if that is my issue or Dyautonomia or both. Just wanted to tell you to keep on truckin’! Thanks for educating others!

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EDS Tweets

Just want to thank EVERYone for ALL your great #EDS retweets! Every bit helps spread awareness. You never know who you'll reach.

Oh TWIST! Oh TWIST!

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