Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Five For Friday 6/21/13

Written by Katie. Posted in Five For Friday

Trying to get this post in before the new week starts! I feel like I have been busier since school has gotten out…Not sure how that happened, but I am trying to fit everything in and still be able to function. Needless to say, I’m making sure I am getting in those non-negotiable naps each day!

1.  Medical Stuff:

  • 1 Day of PT. Leg springs, arm bike, elliptical, floor work.
  • 2 Days of Home Rehab.
  • 2 Dance Practices. Half of the advanced routine to go and we will be ready to teach! Coaching begins Friday!

2.  This week was all about hanging out with the girls…my Mom, sisters, and nieces. I can’t get enough of these beauties.

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Finally meeting Baby Annie. I love baby smell.

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Cecilia Jane

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Anneliese Claire.

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Sisters.

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More sisters

3. I am so sick of my workout playlists.  They have been played to death!  My Aunt sent me a few good songs to add today, but I am looking for even more suggestions…What are your favorite songs to sweat to? What songs inspire you to do more, more, more? Feel free to comment or email! I’d LOVE to hear them! Don’t be shy!

4. I have been trying to catch up on foundation work while both sisters are here.  Bookkeeping, establishing a solid budget, going over the 501 c3 draft, and getting thank you’s/receipts ready to mail out.  It’s a lot of work, but it is rewarding, purposeful work.  Work that meets a need; and one that has a strong passion in my life.  It may be slow going, but I keep reminding myself that it’s all a process, not a sprint.

5.  This picture was shared with me this week.

Handicapped Letter

Here’s the story behind it:

“My name is Emelie Crecco, I’m 20 years old and I have cystic fibrosis. CF affects the lungs (as of many organs in the body) because of this I have a handicapped sticker. I’m not one to “abuse” the sticker, meaning I use it when I’m having a “bad day” (some days its a little harder to breathe). Today was HOT so I needed to use my sticker. I was running errands all day around my town, I pulled into a handicapped spot, placed the sticker in my mirror and continued into the store. Upon returning to my car I found a note written by someone, it said “Shame on you, you are NOT handicapped. You have taken a space that could have been used by an actually handicapped person. You are a selfish young lady.” I was LIVID. How can someone be so ignorant and cowardly? They clearly saw me walk out of my car, why not approach me? Not all handicaps are visible. I would love for you to share this story. It would help spread awareness for CF, but it would help open people’s minds to what handicapped really is.
Thank you for your time,
Emelie Crecco”

This is why I do what I do.

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