Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Life as a Zebra Full Length Documentary

Written by Katie. Posted in Favorites, Media, Memorable Experiences

So you may have seen the post back in March about the Life as a Zebra Documentary that was released. You may have even watched it…related to it in some way…or even learned something.

For the month of February, I was followed by cameras as Max, the reporter, documented my life with EDS and POTS.  It was originally supposed to be a five-minute story, which then turned in to an 11-minute story.  The 11-minute version came out in the beginning of March.  After it had been out for a couple of days, the station, as well as the YouTube link, started to receive such a positive response that Max and the station asked if they could do an extended documentary by following Allie and me through the Life as a Zebra Foundation benefit concert (that we hosted in April).

Therefore, this extended version (16 minutes) was released on Monday and can be found by clicking the link below.

I feel weird asking people to watch it because it is so focused on me…but I guess I will anyways.

Not because I am the subject, but because someone out there may relate to it, be helped by it, learn something from it, or even be diagnosed because of it.

That is my hope…if this documentary helps just one person, it will have been worth it.

Thank you all in advance.


Katie xx

(Sidenote: It is strange to watch myself in the last five minutes of the video because I was so POTSy and sleep deprived at that time.  I don’t remember half of it…I was sick, and barely holding it together.  I guess it really is a good example of life with an invisible illness).

Click here to Watch the Life as a Zebra Extended Documentary

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Comments (4)

  • Tonya


    I have two questions:
    1. You’re standing while packing those baskets, do you force yourself to stand at times like that when you could sit?

    2. Great zebra neck pillow 🙂 I’ve been looking for more supports and pillows, do you have any recommendations? I need a better pillow behind my neck when I’m sitting in my recliner and probably lumbar support and something for my tailbone on hard chairs. There’s so many to choose from, it’s hard to know.


  • Katie


    Tonya! I owe you an email! I will look back at your questions and email you in the morning. Thanks for all of your support! Hope you are well. Talk real soon…


  • Meghan


    Loved it!! And love you!


  • amanda


    Hey Just wanted to say, LOVE the video and you! I am from Michigan. I have EDS live in GA, have been searching for almost 2 years for a diagnosis, this video has helped me to explain to family and friends in a much better way what the disease is all about and how it affects you. My niece is 21 and i believe she has it, but has no diagnosis., She does have CRPS (RSD) when she fell off her horse she sprained her ankle than developed CRPS from it, which is common I am finding in EDS, I am sharing this video with her too. Her pain doc told her that it would not matter if she has EDS, because he is already treating her pain with RSD, is that true? I think she still needs a diagnosis. well BLESSINGS to you and thank you for sharing your story you are so strong. Because of this video i will be back in the gym tomorrow, I have always been an athlete, (not sports but kickboxing and just active in general, ) i quit 1 year ago because of all my issues and have been getting worse, so now i realize how important it is to get back to the gym GOD BLESS YOU, love AMANDA


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