Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Medical ID

Written by Katie. Posted in Ehlers-Danlos Awareness, POTS Awareness, Questions

I received Dr. Lavallee’s notes from our visit and something that took me by surprise is that he recommends I get a Medical Alert ID Bracelet….I have many questions about this one..

From where?
What would it say? POTS and EDS? Would Asthma have to be a part of it too?
Would I have to specify the type of EDS on the bracelet? Would there even be enough room?
Would a paramedic or ER doc even know what either disorder is?
Would it be better to carry something in my wallet/purse?

Anyone else have one of these bracelets?  I guess I have more questions for the docs when I see them soon…

Oh, and remember those EDS skin folds on my eyes that give me “an almost Asian look?”  In his notes, he referred to them as epicanthal folds.  Interesting stuff.

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Comments (10)

  • David

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    >Can't you email him about what to put on it?

    Reply

  • Katie

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    >Hi David, I plan on calling tomorrow and asking. I'm not sure if he is a doctor who emails his patients, but I would like to find out, since it is such an easy way to communicate. Thanks 🙂

    Reply

  • Katie

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    >Is this Mr. Mathews? I was trying to figure out who David was!

    Reply

  • David

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    >It's me. I follow you religously and can't wait for the post thats says I'M ON MY WAY BACK TO WEXFORD.

    Reply

  • Katie

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    >ME TOO!

    Reply

  • Meghan

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    >Me three! I love you Katie!!! Soon enough…..

    Love you, love you!

    Meghan

    Reply

  • Allie Dama

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    >get me one too!

    Reply

  • Katie

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    >Al~I think we need to check and see if Tiffany makes them.

    Reply

  • Allie Dama

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    >http://www.tiffany.com/Shopping/Item.aspx?sku=14997121

    Reply

  • Katie

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    >$2,250.00!! Do you think insurance will cover them? 😉

    Reply

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