Yes, I said that.  But I can’t take full credit after Allie said I looked like a peep on Easter.  But if it were between the Queen and I and our “peepness,” the Queen would have taken the cake for sure. 

So as I have already mentioned, we had a royal wedding sleepover, full of English Tea, Bangers, English Muffins, Strawberry Jam, and big, beautiful HATS!  The hats in themselves warrant their own blog post.  When it was decided that this sleepover was going to happen, my Aunt Laurie and Aunt Mada went to work on designing our royal masterpieces.  As you will see, each hat is a one of a kind.

I realize my posts lately have been a lot of copying, pasting, and redirecting you all to other sites.  As I am trying to spread awareness for Ehlers Danlos Awareness month, I have also been battling an intense amount of fatigue, tachycardia, headaches, brain fog, neck pain, and have therefore, been honestly having some pretty emotional and frustrating days.  Thus, my posts have been pretty short recently. 

…BUT what’s my mantra?  “This too shall pass!”

I have wanted to post about my weekend since Sunday, but I knew it would be best if I waited for my body to start behaving better, so I could actually write coherently. 

The following is a link to various myths and facts about Ehlers-Danlos Syndrome.

http://www.ehlersdanlosnetwork.org/myths-facts.html

For the record, if anyone happened to catch the House episode recently about Ehlers Danlos, it was NOT an accurate depiction of the disease.  One woman’s blog I follow, wrote about the episode, and I found that her feelings about it happened to echo my thoughts as well. 

Great informational article about EDS and it’s manifestations.  Gotta love the humor sprinkled throughout…

1.  Medical Stuff: 

• 1 day of PT: More circuit work, more pelvic clocks, and I graduated to the full foam roller for back stabilization marches!  Woot! Woot!
• 2 days of home rehab.
• I had my tri-weekly Dr. Rosen appointment.  The quote of our session (which should be the quote for my life) was, “All you need to worry about is making today right.” ~Dr. L. Rosen.  I also followed Larry’s instructions and showed Dr. Rosen my Apollo 13 poster.  He gave me another A+, and thought it was a genius exercise for me to do.  Gotta love the team approach when it comes to my docs. 
• It’s been a week of increasing my Propranalol.  I haven’t felt a huge difference, but hopefully when I add Midodrine to the mix next week, I will feel better.