Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

This is all I got…

Written by Katie. Posted in Ehlers-Danlos Awareness

I came across a couple of interesting blog posts by eye doctor, Diana Driscoll about EDS and POTS, and the possible MS connection.  You can read them here.  (It makes more sense to read the second one first and then scroll up to read the first one.)

POTS in Toledo

Written by Katie. Posted in POTS Appointments

 

April 20th was finally the day I had been waiting for!  Brad and I went to Toledo for my POTS appointment with Dr. Grubb’s nurse practitioner, Beverly.  When I was diagnosed back in November, I researched, and researched, and researched POTS like it was my job.  I would say that 90% of what I found about POTS was either written by Dr. Grubb (an electrophysiologist), was written by a team of doctors including Dr. Grubb and Beverly, or included quotes from Dr. Grubb.
When I went to see Dr. Tinkle in Cincinnati for EDS, Dr. Tinkle told me I needed to get in to see Dr. Grubb because he has such a strong understanding of not only, Dysautonomia, but also how POTS and EDS play into each other.  However, I was warned that it takes quite some time to get into him because people all over the country travel to see him. 

Five For Friday 4/22/11

Written by Katie. Posted in Five For Friday

 

1.  Medical Stuff:
  • 1 Day of PT~I did a new circuit that had me rotating through light treadmill work, light elliptical work, Body Gym squats, and toe raises…I also did arm and back strengthening, balance exercises and my PELVIC CLOCKS!
  • 1 Day of home Rehab.
  • I had prolo round 4 on Monday on my neck, upper back, mid back, and ribs.  I go back May 31st for round 5.
  • On Wednesday I went to Toledo to see Dr. Grubb’s NP, Beverly, for POTS.  I am still working on this (long) blog post, but I will say that my appointment did not disappoint.  I left with a much better understanding of why my body is doing what it is doing, and hopefully ways to help better manage my POTS. 
  • I filled a prescription for Midodrine for POTS.  I don’t start it for 2 more weeks though.
  • My open toe compression stockings just came in the mail!  As soon as I try them on, I will grace you all with a picture. I better make sure my toes are pretty first!

"Pain can be endured and defeated only if it is embraced. Denied or feared, it grows." ~Koontz

Written by Katie. Posted in Prolotherapy

Monday, I had round 4 of prolotherapy.  As I was getting ready to leave for Mishawaka, my friend Ila called to see if I was still coming because it was snowing.  Yes, SNOWING on April 18th. 

Sidenote:  Every time I have had prolo, it has snowed.  When I made my April 18th appointment, I made the comment to the receptionist, “Well, at least I won’t have to worry about snow by then.”  Mother Nature sure showed me.