Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Roses and Thorns

Written by Katie. Posted in About Me

Thanks to all who have been inquiring about Cincinnati, my appointment with Dr. Tinkle, and when I’ll update my blog about it.  I am realizing that I have more readers than I thought :) 

I am working on the appointment post but it is a lengthy one and I want to make sure I have everything accurate before I publish it.  Tomorrow I am going to listen to the audio tape of the appointment before I post it since Dr. Tinkle was kind enough to let me audio tape what he had to say (which was a lot).   

Five For Friday 12/10/10

Written by Katie. Posted in Five For Friday

1.  Jill, Audrey, Jameson, and Cami came to visit on Monday.  It was awesome to just hang out with the girls!  Jameson and I made chocolate chip muffins, and of course we had to taste test them! I think Jameson approved of our baking. What do you think?

Mind Over Matter

Written by Katie. Posted in Editorials

 

Today I did not spend time in a doctor’s office going over my physical symptoms.  Rather, I spent my time at the doctor this morning sorting through emotional symptoms. For 60 minutes every other week, I sit and work through the mental issues and stress that come from day to day life with my psychiatrist of 11 years.

POTS in the News

Written by Katie. Posted in POTS Awareness

Thanks Uncle Steve for letting me know about this article.  It is crazy that since I have been diagnosed, I have actually read two articles in the news about girls with POTS.  This is encouraging to me because hopefully the more POTS is out there in the media, the more (hopefully) will be learned about POTS, and therefore researched about this little known disorder. 

Things That Make you Go Hmmm

Written by Katie. Posted in Questions

Now that I know I have POTS and Ehlers Danlos, the question has transitioned from what is wrong with me to why is my body doing what it is doing because of these disorders?  It is ironic to me that I searched for a LONG time for answers, and when I found them, I received answers without answers.  Do not get me wrong.  It is a relief to know my diagnoses.  And it is a relief not to have to go to another specialist only to be treated like a crazy hypochondriac, while being handed a depression scale.  But to be honest, I like things black and white.  I like to know that if I do A, B will happen.  I like to have problems (or disorders) where a “one size fits all” kind of approach tends to work.

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